Jeanne,
what a wonderful update on Elise.. Children are such blessings and they do
seem to come through these things much easier than adults because there is
no battle in their minds I suppose. I thank you for letting us know an
update and look forward to the additonal information you will be sending...
Carla ....Keeping Elise in my prayers..
-----Original Message-----
From: Grebes111@aol.com <Grebes111@aol.com>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Tuesday, February 03, 1998 8:10 AM
Subject: [MOL] Re: Little One : -) & other stuff
> Well last time I posted I said I would give more frequent updates and
as
>well I have a few pieces of info that others might find helpful. First,
Elise
>is still amazing everyone. This week she began her last week of radiation.
I
>don't know where the six weeks went. Still has minimal side effects and is
>even showing some great improvements. The discomfort in her throat has
>subsided and her swallowing reflex is returning. The doctors gave the okay
>for trying to teach her how to eat again. It's slow going, but an
incredible
>step. Once she can eat on a regular basis, they can start thinking about
>removing the feeding tube. Not only that, but they are going to do a final
>scope and if all goes well, they will remove the trach in 3 weeks. I can't
>wait to hear her voice again. And to keep adding to the list of good
things,
>all of a sudden she is trying to mouth words and has started trying to walk
>again. It's almost like overnight she became so much of what she used to
be.
>And so many of her personality traits are starting to return and she is
doing
>things that any18 month old would do. Neurologically, we still haven't
seen
>the expected effects of the radiation or tumor. I know the effects can be
>kind of delayed, but when you go on a day by day basis, these last few have
>given so much pleasure. I don't think I'm being unrealistic, but you can't
>help but get a renewed sense of hope.
> FYI - shark cartilage - There was a notice in People magazine that a
>hospital in NJ (Hackensack, I think) is doing a trial on shark cartilage.
>They are looking for people with breast cancer or brain tumors who have
been
>treated with more conventional methods and not gotten the desired results.
>I'll try to track down the number to call and post tomorrow.
> Also, there is a conference in San Francisco in April, sponsored by the
>National Brain Tumor Foundation that is dedicated to those with brain
tumors
>(one track for adults and another track for children) and their caregivers.
>Wish I had brought all this info with me, but once again I will post the
>details tomorrow. Hope everyone has a great day!!! Jeanne
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