Sally, right now you and Charlie are going through so much in such a
whirlwind and I know that leaves very little time to really let this all
sink in and settle for you. I will pray for Charlie and the knowledge and
ability of his medical team and I will pray for both of you to find the
strength and inner peace to fight your way through. You know that there are
so many here pulling for you and here if you just need to talk.
.......Carla.....
-----Original Message-----
From: Charlie T <charliet@flash.net>
To: Chaya Tinterow <tinterow@ix.netcom.com>; Rob and Carol Talley
<RWTalleyJR@aol.com>; John Sandstrom <JSand713@aol.com>; Susana Riddle
<SRiddle166@aol.com>; Titou Middleton <Twotwobird@aol.com>; Boo Middleton
<Caraland@aol.com>; MOL Mailing List <mol-cancer@lists.meds.com>; Howard
Hoffmaster <hoffmst@webtv.net>; Ronnie David <RonDav88@ix.netcom.com>; Scott
Brockett <Scott_Brockett%MMI@notes.interliant.com>
Date: Saturday, January 10, 1998 1:43 AM
Subject: [MOL] Changes and results of planning meeting
>Again, to dear friends, I apologize for the form letter...I am running on a
>sandwich and no sleep for the past 24 hours, and simply don't have the
>energy to address each one of you, but the information is the same for all
>
>Today was the "planning meeting" at MD Anderson. This is the final step
>before beginning the actual treatment of the cancer.
>
>In the planning meeting, you have the whole team: doctors (I counted 11
this
>morning), plus technicians, nurses, social workers, etc. They have all
>reports, films, slides, from initial diagnosis through the present. We had
>been told that Charlie was to simply have radiation for 7 weeks and
>cautioned of the side effects.
>
>A CT scan done 2 days ago and compared to the 2 prior in the last month
>reveal that his tumor is larger and more aggressive than it was even
several
>weeks ago. Although we were presented with every choice, the most
>successful, unfortunately is more complex and debilitating than we were
>anticipating.
>
>Charlie has elected to enter a clinical trial where he will be randomly
>assigned one of three "arms" or treatments-the first being a protocol done
>here at MD Anderson, the second at University of Chicago, and the third at
>Johns Hopkins. The purpose of the clinical trial is to determine over a
>number of years with randomly selected protocols or arms is best. All
three
>have been very successful.
>
>They involve heavy hits of chemo with radiation, so we had a crash course
>today in side effects and success with chemo before he consented to
>participate in this trial. Although the decision was left up to him, it
was
>definitely indicated that at this stage of the disease this is our best
>hope. We have both decided that despite the warning they must give you and
>the very sobering consents you have to sign in order to participate,
Charlie
>will sail through this. Again, this has been very successful to a great
>many people with this type of tumor. I promise to write all of you
>individually when time permits, but it's growing late.
>
>Treatment begins Monday.
>
>My love to you all,
>
>
>Sally
>
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