BobCoffin wrote:
>
> A friend of mine has been diagnosed with mucinous adenocarcinoma. It
> presented as a draining cyst at the hip. After unsucessful treatment with
> antibiotics, they finally tested the drainage. That led to exploratory
> surgery which resulted in removal of the appendix (which was almost completely
> consumed) and a portion of the intestine. Couldn't get all the tumor in the
> abdominal wall. The doctors admit they still don't know the primary site.
> The medical oncologist seems to have given up (or has a negative bedside
> manner). This kind of cancer seems to be very rare and I am looking for
> resources to learn about the problem and what treatments are avaliable, both
> conventional and unconventional/holistic. I live in San Diego, California.
> Any help or direction will be appreciated.
>
Dear Bob,
I live in Orange County. I would suggest second opinions and we found
that UCLA, USC, and UCI, whom are all on the National Cancer Institute
as some of their comprehensive hospitals, seem to be doing more research
into this area than many facitilites as they the capability to perform
clinical trials and seem to have the most experience, in this area. The
other facility is in Texas which is MD Anderson and I would not leave
out Stanford in berkely Cal who is also rated as a comprehensive
facility.
Best to you and you are a great caregiver indeed.
God Bless
Marty
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