Lillian, I hate to tell you this, but I honestly don't have an answer for
you on why the MRI, except in search of a tumor. The bone scan consisted of
an injection of radioactive goop and then I had a whole body scan done. As
I understand it the injected material goes to areas whereby there are or
have been breaks, arthritis, cancer. I don't believe that is the same as a
bone density.
I think it is great that you carry around a folder of all you have had done.
I started out thinking that I could remember everything, and then I got
copies of some of the things that I needed and then as I go to doctors I end
up giving them my copies. So I will have to build a complete folder that
stays with me. I am sorry that you suffered at the had of a doctor. I am
sure that makes it harder for you to believe and trust in your medical team
without alot of careful review.
You know how important it is to trust in your doctors and all that is being
done to you. Thats why I went to see 3 oncologists. I believed in my
surgeon, who believed in PET scans and the first two onc's didn't. I
couldn't figure out how to buy into those onc's when they didn't agree with
the doctor I trusted, so I went to a third and I am happy there, even though
we haven't agreed on treatment yet! LOL!
I am more afraid of the fact that we don't have really good tests that we
can rely on and a standard for all the tests that are out there. The first
two onc's just wanted to do exrays every 3 months and let me go. This one
is doing tests that no one ever discussed doing with me to further define
where I am. By researching I am learning that the actual staging can vary
from what the surgical, pathological staging was set as and some of these
tests will fine tune that.
I am ok waiting until Friday at this point, as I really want to review them
with him face to face and I want to schedule to see the films. I still
haven't seen where my one lung is and where it has moved my heart! Some
days I think I am sitting on it! LOL!
I am having trouble with fluid in my chest... I gurggle like a 150 lb.
aquarium! It feels like a lava lamp too! Also something with my heart is
strange, but I will address all that Friday with him. I hope he didn't
schedule me for a short appointment... LOL!
I found a clinical trial for a cancer vaccine that I may have a chance of
getting into, but will also need some more testing (if possible), and I
believe I still have the bone marrow test to be scheduled. I will write
down the name of what they look for there, as I forgot since the last
appointment.
I don't know if I helped you at all with your question Lillian, but please
let me know. My prayers are with you and you with them. God Bless you.
Carla
-----Original Message-----
From: firefly <firefly@islc.net>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Wednesday, January 07, 1998 11:16 PM
Subject: Re:Carla: [MOL] bone scan
>Pls. advise me as to why you are getting a MRI of the Brain? Is it just
>standard proceedure? I have had alot of brain MRI done; but it was for two
>reasons, 1st I have a benign tumor (well they never tested it, because of
>it's location), rt. temporal lobe, 2nd when the mennegies swelled around my
>brain. Is a bone scan and a bone density test the same? Excuse my
>ignorance; but I need an answer to this. I peek into all my folders;
infact
>I have copies of everything and am I glad since I have suffered pernment
>damage simply because the doctor would not listen to me. I must take meds.
>the rest of my life; just to live. No, I am not afraid of cancer, I am
>afraid of the doctors! By the way your doctor should have the MRI results
>with in the same day if your going in the morning and the next day if you
go
>in the afternoon. I don't let the doctors keep me waiting long, I carried
>all my medical records. You would be amazed at what you learn and you
>appreciate this complex thing called our bodies, our minds. Good luck and
>prayers your way, lillian
>-----Original Message-----
>From: ken naehring <blessu@worldnet.att.net>
>To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>Date: Wednesday, January 07, 1998 11:14 PM
>Subject: Re: [MOL] bone scan
>
>
>>No doubt I did give myself a scare Torie, but now there is no letting it
go
>>until I am sure that I have to. The good news is that I am going for MRI
>of
>>brain in a couple of hours and I will drop by the cancer center library.
I
>>am not saying that I have a problem, but I want to know what it would
mean.
>>I am much better able to deal with things when I have some background
>>information on them. I have alot of trouble when I know nothing and they
>>throw a surprise at me, that is when I crash. So I will just pursue this
>as
>>a part of my normal quest for knowledge and then let the doctor do his
job!
>>LOL!
>>
>>I am reading another book by Greg Anderson called the Cancer Conqueror and
>>though it is not written in a first person type style, which I think would
>>give it more interest and impact, it does have some very positive
>>information about mind and belief. So my dear friend, I am OK and I will
>>be. I just have that type of personality that needs to know. I always
>deal
>>best with the known. Wouldn't it be nice if you went in for a test and
>they
>>explained everything to you up front, then ran the test, then read it
while
>>you were there and explained it to you before you left? No more waiting
>and
>>wondering? Ahhhh theres a dream! Hope you know that you are in my
>prayers
>>and my heart. :-) ......Carla....
>>-----Original Message-----
>>From: victoria@best.com <victoria@best.com>
>>To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>>Date: Wednesday, January 07, 1998 1:34 AM
>>Subject: Re: [MOL] bone scan
>>
>>
>>>Hi Carla..
>>>I have no idea what it should look like, and never have had a bone scan
>>yet,
>>>but it sounds to me like you gave yourself a scare by peeking at it
>without
>>>the doc around to interpret. Take some deep breaths and let it go till
you
>>>can see the doctor, and maybe you could get in to see him sooner than
>>>Friday?..chances are you are getting concerned for no reason..They are
the
>>>professionals. That's why we PAY them so much MONEY!! It's a shame to pay
>>>them and still have to do the work, huh? :-))
>>>
>>>I'm wanting to shield you from the stress and having a hard time from
this
>>>distance...so..here's a big
>>>
>>>{{{{{HUG}}}}}
>>>
>>>coming your way...
>>>
>>>wishing you deep breaths, good thoughts, beautiful images and quiet sleep
>>>
>>>Torie
>>>
>>>
>>>At 10:45 PM 1/6/98 -0500, you wrote:
>>>>I need some information on bone scans. I had one done tonight and if I
>>>understood it correctly, the radioactive material is quickly absorbed
into
>>>areas where there is cancer in the bone and on the scan they appear as
>dark
>>>spots. Does anyone know if this is correct? Also if you have resected
>>>lung cancer and it does appear in the bones, then what does that mean?
>Any
>>>information would be greatly appreciated. I donated (ha ha) my lung, but
>>>this is the first bone scan I have had done and so I am not sure what to
>>>expect and I don't see the doctor until Friday. I sort of took a look at
>>my
>>>films before I left, though I wasn't supposed to.. Oh well.......Carla
>>>><!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN">
>>>><HTML>
>>>><HEAD>
>>>>
>>>><META content=text/html;charset=iso-8859-1 http-equiv=Content-Type>
>>>><META content='"MSHTML 4.71.1712.3"' name=GENERATOR>
>>>></HEAD>
>>>><BODY bgColor=#ffffff>
>>>><DIV><FONT color=#000000 size=2>I need some information on bone
>>scans. I
>>>>had one done tonight and if I understood it correctly, the radioactive
>>>material
>>>>is quickly absorbed into areas where there is cancer in the bone and on
>>the
>>>scan
>>>>they appear as dark spots. Does anyone know if this is
>>>>correct? Also if you have resected lung cancer and it does
>>>appear in
>>>>the bones, then what does that mean? Any information would be
>>greatly
>>>>appreciated. I donated (ha ha) my lung, but this is the first bone
>>>scan I
>>>>have had done and so I am not sure what to expect and I don't see the
>>doctor
>>>>until Friday. I sort of took a look at my films before I left,
>>though I
>>>>wasn't supposed to.. Oh
well.......Carla</FONT></DIV></BODY></HTML>
>>>>
>>>
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