Yes, yes, yes, I did see it, Torie, and I'm so glad you brought it up. I
was told by a friend at work yesterday that the Public Libraries carry those
books indicating whom the authors have chosen as the "Best Doctors". I'll be
checking today and I'll let you know if I succeed.
Lisa
At 11:39 PM 1/5/98 -0800, you wrote:
>Carla..did anybody see 60 minutes last Sunday? About the 2 guys who started
>a business they were referring to as "Best Doctors". It's a
>telephone/research center where people do all this research for you, for a
>fee. I came in in the middle of it, so maybe somebody else has the full
>story, but it sounded like a great service. They started it because one of
>the guys had an "inoperable" brain tumor and they didn't want to take no for
>an answer... They found a Dr. who was not afraid to operate and they guy is
>still here 12 years later...though is now once again having tumor growth...
>
>anyway..I didn't get the info on how to contact them, but if anybody else
>did, I'd really appreciate hearing it..
>
>Torie
>
>
>At 09:26 PM 1/5/98 -0500, you wrote:
>>Bob, you bring up some very interesting points as to paying a team of
>>students to research. I had to reply to this when I realized you were also
>>mentioning NCI and a potential grant of sorts. I just received two mailings
>>from NCI about lung cancer; including the research being done on it. Much
>>to my dismay I found that all the of the information they sent me was
>>originally printed in 1993. Now this I really have a problem with. I work
>>hard every single day trying to see what is happening out there and trying
>>very hard to keep up, I cannot believe that they are sending out 5 year old
>>information. One of them was actually even dated Feb. 1993! I would be
>>ashamed to send any research information out that old and I would have to
>>believe that if they put a month on one of them they might have been
>>planning a more recent update? I just had a PET scan done and needless to
>>say it is not listed anywhere as an option.
>>
>>I don't want to be angry, but I do feel that this is something to try to do
>>something about. I don't want 5 year old research information! They were
>>really nice to deal with to obtain the information and the PDQ information,
>>but something needs to be done.......Thanks for listening... Carla...
>>-----Original Message-----
>>From: Bobsomm <Bobsomm@aol.com>
>>To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>>Date: Monday, January 05, 1998 12:43 PM
>>Subject: Re: [MOL] Alternative treatments
>>
>>
>>>Right on John, BUT !!!
>>>
>>>What if someone out there does have the silver bullet and we are so shocked
>>by
>>>the astronomical price tag that we consider them to be scum and miss the
>>>opportunity. Penicillian came form scum you'll recall. Actually it was
>>>mold.
>>>
>>>But anyways, as we say in Virginia, we who are neophites in the medical
>>arena
>>>are at a serious disadvantage. Or at least
>>>I feel that I am.
>>>
>>>Since it takes a lot of time for all of us to digest all the information
>>which
>>>is coming at us like we are drinking from a fire hose, there must be some
>>way
>>>for us, the caregivers and victims of cancer, to assimilate the data
>>better.
>>>
>>>Was toying with the following idea. What if we contact some prominent
>>>university medical school's oncology staff and offer modest support for a
>>>small group of students as follows.
>>>
>>>We pay 2 or 3 advanced students $25.00 or so, per hour for 5 hours each,
>>per
>>>week for one month to digest some of the plethora of data hitting us.
>>Point
>>>is to have an honest assessment of the informaiton on which to proceed.
>>>
>>>I believe that they would be checking a lot of this out anyway in their
>>normal
>>>educational pursuits. Could we get NCI/NIH to provide support like this
>>for
>>>us? Could we get a caregivers grant from the government? Could this be
>>an
>>>extension of some of the services currently being provided by NCI?
>>>
>>>Do not know but suspect that NCI is not allowed to give out unapproved
>>>information and opinions. Well, some of us need/want this frank discourse
>>and
>>>dam the torpedos.
>>>
>>>Look at all the references to Hydrazine Sulfate, and many other medicines
>>over
>>>the past two weeks. What of Berzinski's magic potients? What about Shark
>>>cartilage and oils and gensing and clematis root, China#1, etc.
>>>
>>>I sure will be upset to find that I have missed the boat for my
>>brother-in-law
>>>because I just cannot assimilate the info fast enough with enough
>>>sophistication to "know" that I am giving him the best data.
>>>
>>>The doctors have basically written him off saying, just make him
>>comfortable
>>>and happy.
>>>
>>>There will come a time to accept that he may stop living among us. I
>>believe
>>>that will be at the funeral.
>>>
>>>Until then, we must grasp for straws, be it antineoplastin, hyperthermia,
>>or
>>>whatever.
>>>
>>>Any ideas gang??? Suggestions welcomed?
>>>
>>>VR Bob
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