Bob, you bring up some very interesting points as to paying a team of
students to research. I had to reply to this when I realized you were also
mentioning NCI and a potential grant of sorts. I just received two mailings
from NCI about lung cancer; including the research being done on it. Much
to my dismay I found that all the of the information they sent me was
originally printed in 1993. Now this I really have a problem with. I work
hard every single day trying to see what is happening out there and trying
very hard to keep up, I cannot believe that they are sending out 5 year old
information. One of them was actually even dated Feb. 1993! I would be
ashamed to send any research information out that old and I would have to
believe that if they put a month on one of them they might have been
planning a more recent update? I just had a PET scan done and needless to
say it is not listed anywhere as an option.
I don't want to be angry, but I do feel that this is something to try to do
something about. I don't want 5 year old research information! They were
really nice to deal with to obtain the information and the PDQ information,
but something needs to be done.......Thanks for listening... Carla...
-----Original Message-----
From: Bobsomm <Bobsomm@aol.com>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Monday, January 05, 1998 12:43 PM
Subject: Re: [MOL] Alternative treatments
>Right on John, BUT !!!
>
>What if someone out there does have the silver bullet and we are so shocked
by
>the astronomical price tag that we consider them to be scum and miss the
>opportunity. Penicillian came form scum you'll recall. Actually it was
>mold.
>
>But anyways, as we say in Virginia, we who are neophites in the medical
arena
>are at a serious disadvantage. Or at least
>I feel that I am.
>
>Since it takes a lot of time for all of us to digest all the information
which
>is coming at us like we are drinking from a fire hose, there must be some
way
>for us, the caregivers and victims of cancer, to assimilate the data
better.
>
>Was toying with the following idea. What if we contact some prominent
>university medical school's oncology staff and offer modest support for a
>small group of students as follows.
>
>We pay 2 or 3 advanced students $25.00 or so, per hour for 5 hours each,
per
>week for one month to digest some of the plethora of data hitting us.
Point
>is to have an honest assessment of the informaiton on which to proceed.
>
>I believe that they would be checking a lot of this out anyway in their
normal
>educational pursuits. Could we get NCI/NIH to provide support like this
for
>us? Could we get a caregivers grant from the government? Could this be
an
>extension of some of the services currently being provided by NCI?
>
>Do not know but suspect that NCI is not allowed to give out unapproved
>information and opinions. Well, some of us need/want this frank discourse
and
>dam the torpedos.
>
>Look at all the references to Hydrazine Sulfate, and many other medicines
over
>the past two weeks. What of Berzinski's magic potients? What about Shark
>cartilage and oils and gensing and clematis root, China#1, etc.
>
>I sure will be upset to find that I have missed the boat for my
brother-in-law
>because I just cannot assimilate the info fast enough with enough
>sophistication to "know" that I am giving him the best data.
>
>The doctors have basically written him off saying, just make him
comfortable
>and happy.
>
>There will come a time to accept that he may stop living among us. I
believe
>that will be at the funeral.
>
>Until then, we must grasp for straws, be it antineoplastin, hyperthermia,
or
>whatever.
>
>Any ideas gang??? Suggestions welcomed?
>
>VR Bob
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