Re: [MOL] Tammy and Paul [02802] Medicine On Line

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Re: [MOL] Tammy and Paul

I just saw your messages and wanted to make sure you get the information to
help in making these decisions.  Two things you may wish to check into is
radio surgery SRS and Missile Base by Stanly Orders of N.Y.  #
(516)522-2727.  Both parents should get a second opinion and there are some
wonderful outstanding cancer centers and doctors here in the States.  If a
patient needs transportation that too can be arranged.  Only go with the
best there is and keep in mind that a doctor can only do a therapy that is
offered at the hospital they are connected with.  So with this knowledge,
good luck, know your parents have our prayers and here is some really good
sites for you.  Your friend, lillian


 Here you will meet a wonderful caring group of individuals who are
cancering or who are loved ones and friends being advocates for those
 Individuals in this group are not in the medical professional field.
Therefore,we do not 
 endorse a treatment, drug or product. Our people combined do have many
year's of 
 accumulated knowledge and expierence, who come from all walks in life and
are able to 
 lend tremendous assistance to help you walk through this journey. 

 There are a few matters of importance to address. 
 It is the general assumption of the group that one can use alternative
treatments (with your 
 doctors permission) in conjunction with traditional therapy. 
 We feel that an individual who has had testing and is returning to the
doctor should take 
 someone with them as an extra set of ears. 
 It must be remembered that this is a most stressful time for you. We also
agree that a 
 second or even a third opinion is healthy. One needs to shop for the right
doctor for them; 
 as each of us are so different not only in personality; but our bodies
react differently. 
 You should be seeking nothing but the best doctors and hospital, remember
this is your life 
 and you want to be in control. The best way to be in control is to acquire
all the information 
 needed for your particular cancer; so that you and your doctor can descide
the best 
 treatment for you. 
 We find stress is our worse enemy, it is so important to remove yourself
from stressful 
 situations and non positive thinkers. 
 There are so many new drugs and treatments our there for most cancers that
lend hope to 
 Be prepared for you doctors visits with questions. Should the doctor
interrupt you while 
 you are questioning explain that you have more questions. Make sure the
doctor speaks to 
 you in lay terms and that he is positive also. 
 Too often the doctor will give a gloomy statistical report, thus taking
hope away from the 
 patient and we find so many people who far out live the guess of any
doctor. Last; but 
 never least make sure that you eat healthy and that you keep your immune
system built up. 
 Again, we are here for you, we are a place of compassionate comfort, a
place you can rant 
 and rave knowing that we too have done that. A place of shelter; whereas
all of us know 
 what you are going through. Your friends of the MOL CANCER FORUM 


 National Cancer Institute 
 Univ of Penn 
 Cancer Notes on the Net 
 Medicine On Line 
 MD Anderson 
 Mem. Sloan-Kettering 

 85% CancerAnswers - Alternative Treatments 
 84% Cancer Information -Alternative Treatments 
 84% Alternative Remedies for Cancer and other diseases. 
 84% Re: Alternative cancer treatments [00299] 
 83% 5. Internet Resources on Cancer 

See what the doctor says on alternative meds.

"50 Esential Things to Do When the Doctor 
Says it is Cancer", Greg Anderson 
Dr. Bernie Siegels "Love, Medicine and Miracles" 
Dr. Carl Simontons "The Healing Journey" 
Anne Frahms "Cancer Battle Plan" 
Greg Andersons "50 Essential Things to Do When the Diagnosis is Cancer" 
Resources: Support Services: Transportation & Lodging 


Air Care Alliance 
4620 Haygood Road, Suite 8 
Virginia Beach, VA 23455 
(800)296-1217 (National Patient Air Transport Helpline) 
(757)318-9107 FAX 
Web site: 
A trade organization providing air transportation to ambulatory and
medically stable people. 

6133 Freeport Boulevard 
Sacramento, CA 95822 
(916)429-2166 FAX 
Web site: 
Provides cost-assisted emergency medical transportation. 

Corporate Angel Network 
Westchester County Airport, 1 Loop Road 
White Plains, NY 10604 
Web site: 
Provides free plane transportation for cancer patients undergoing treatment
from recognized cancer treatment centers. 

National Association of Hospital Hospitality Houses 
4915 Auburn Avenue 
Bethesda, MD 20814 
Web site: 
Provides information on away from home lodging for patients and families. 

National Patient Air Transport Helpline 
P.O. Box 1940 
Manassas, VA 22110 
Web site: 
Provides referrals for charitable and discounted patient medical air
transport services. 


Bone Marrow Transplant Newsletter 
1985 Spruce Avenue 
Highland Park, IL 60035 
(847)831-1943 FAX 
Web site: 
Publishes quarterly newsletter for bone marrow peripheral stem cell
transplant patients; provides patient-to-survivor telephone link. 

Bone Marrow Transplant Family Support Network 
P.O. Box 845 
Avon, CT 06001 
Provides a telephone support network, family counseling and education, peer
groups and insurance information for BMT patients and families. 

Living Bank 
P.O. Box 6725 
Houston, TX 77265 
(713)961-0979 FAX 
Promotes and facilitates organ and tissue donor commitments. 

National Marrow Donor Program 
3433 Broadway Street NE, Suite 500 
Minneapolis, MN 55413 
(800)MARROW2 (Donor Information) 
Web site: 
Maintains a registry of bone marrow donors; provides donor recruitment

National Bone Marrow Transplant Link (BMT Link) 
29209 Northwester Hwy. #624 
Southfield, MI 48034 
(810)932-8483 FAX 
Web site: 
Provides information and support to BMT patients and families; promotes
public understanding and research for BMT issues. 

Organ Transplant Fund 
1102 Brookfield, Suite 202 
Memphis, TN 38119 
(901)684-1128 FAX 
Web site: 
Provides financial and insurance assistance, patient advocacy and housing
information during treatment for transplant recipients and their families. 

Transplant Foundation 
8002 Discovery Drive, Suite 310 
Richmond, VA 23229 
(804)288-2408 FAX 
Provides financial assistance to offset cost of post-transplant
medications; acts as clearinghouse for transplant information.



            HOME HEALTH CARE 

 National Association for Home Care 
 c/o Consumer Guide 
 P.O. Box 14241 
 Washington, DC 20003 
 (202)547-3540 FAX 
 Web site: 
 Trade association providing referrals to home or hospice care. 

 The Oley Foundation 
 214 Hun Memorial, A-23 
 Albany Medical Center 
 Albany, NY 12208-3478 
 Web site: 
 Support for home enteral and/or parental nutrition therapy. 

 Olsten HealthCare 
 175 Broadhollow Road 
 Melville, NY 11747 
 Web site: 
 Provides home health care services including chemotherapy, nutrition and
 therapies, pain management, physical therapy, and general nursing

 Visiting Nurse Association of America National Office 
 3801 East Florida Avenue, Suite 900 
 Denver, CO 80210 
 Provides skilled nursing and assisted living services. 

 Amherst H. Wilder Foundation 
 919 Lafond Avenue 
 St. Paul, MN 55104 
 (612)642-4068 FAX 
 Web site: 
 Provides assisted living and nursing home care services for the elderly in
 Minneapolis area. 

 Childrens' Hospice 
 2202 Mt. Vernon Ave., Suite 3C 
 Alexandria, VA 22301 
 (703)684-0226 FAX 
 Web site: 
 Provides information and referral services,counseling, support groups,
education, and 
 research aimed at improving hospice care for children. 

 Choice in Dying 
 1035 30th Street NW 
 Washington, DC 20007 
 (202)338-0242 FAX 
 Web site: 
 Advocacy organization for end-of-life rights;provides legal counseling and
information on 
 end-of-life decisions. 

 National Association for Home Care 
 c/o Consumer Guide 
 P.O. Box 14241 
 Washington, DC 20003 
 (202)547-3540 FAX 
 Web site: 
 Trade association that provides referrals to local hospice organizations. 

 Hospice Education Institute/Hospicelink 
 190 Westbrook Road 
 Essex, CT 06426 
 (860)767-2746 FAX 
 Provides information and referral services,education, advice and
assistance regarding 
 hospice and palliative care. 

 National Hospice Organization 
 1901 N. Moore Street, Suite 901 
 Arlington, VA 22209 
 (703)525-5762 FAX 
 Web site: 
 Provides information and referrals to local hospitals, patient advocacy
and professional 

 National Institute for Jewish Hospice 
 8723 Alden Drive, Suite 219 
 Los Angeles, CA 90048 
 Provides free telephone counseling and referrals; trains professionals in
the art of helping the 
 Jewish terminally ill. 


 Americans with Disabilities Act 
 U.S. Equal Employment Opportunity Commission 
 Office of Legal Council 
 1801 L Street NW 
 Washington, DC 20507 
 Provides information and legal assistance regarding discrimination due to
illness or disability 

 Family Medical leave Act 
 U.S. Department of Labor 
 Wage & Hour Division 
 200 Constitution Avenue NW 
 Washington, DC 20210 
 Provides information on employment rights during medical leave due to

 Support Services: INSURANCE & FINANCE

 American Association of Health Plans 
 Membership Department 
 129 20th Street NW, Suite 600 
 Washington, DC 20036 
 Web site: 
 Insurance industry trade association that will provide information on
insurance and health care 

 Blue Cross and Blue Shield Association 
 675 North St. Claire Street 
 Chicago, IL 60601 

 Department of Health and Human Services 
 Inspector General Hotline 
 Office of the Inspector General 
 P.O. Box 23489 
 Washington, DC 20026 
 U.S. government hotline for complaints regarding Medicare or Medicaid;
provides assistance with 
 issues of entitlements, benefits, insurance, and community resources. 

 Disabled American Veterans 
 807 Main Avenue SW 
 Washington, DC 20024 
 (202)554-3581 FAX 
 Web site: 
 Provides assistance with health benefits for U.S. veterans. 

 Hill-Burton Free Hospital Care 
 5600 Fishers Lane, Room 7-47 
 Rockville, MD 20857 
 (800)683-0742 Hotline 
 (301)594-5999 FAX 
 Web site: 
 U.S. government program that can arrange for cost-assisted care for
disadvantaged individuals at 
 certain medical facilities or hospitals. 

 National Insurance Consumer Hotline 
 1001 Pennsylvania Avenue, NW 
 Washington, DC 20004 
 Provides assistance in finding insurance coverage, information on
insurance issues and a consumer 
 complaint service. 

     Support Services: HAIR LOSS

 Look Good, Feel Better 
 The American Cancer Society 
 Teaches women who have undergone cancer treatment how to improve
appearance through 
 cosmetics, wigs, scarfs, etc. 

 212 West Van Buren Street, 4th Floor 
 Chicago, IL 60607 
 (312)294-8598 FAX 
 Web site: 
 Provides donated wigs free of charge. 
 This MOL FORUM is intended to assist people with cancer, their family,
friends and caregivers find the information to help them make decisions
regarding treatment and management of their disease. Nothing presented
herein should be construed as a substitute for professional advice from a
physician or medical practitioner. Reasonable efforts have been made to
ensure the accuracy of the information provided, but the Mol Forum makes no
warranty , nor endorses any recommendation, practice or product of any
organization or service contained herein. 


> From: tammy forrest <>
> To:
> Subject: Re: [MOL] IS HERE HOPE 
> Date: Tuesday, December 29, 1998 7:16 PM
> Dear Paul
> my mother is going through treatment for small cell cancer in the lung
> area.  did you have to have radiation to the brain region?  they are
> recommending this for my  mother.  she is not sure what to do?
> ----------
> From:
> To:
> Subject: RE: [MOL] IS HERE HOPE 
> Date: Tuesday, December 29, 1998 2:55 PM
> Dear Paul:  I am 56 years old and I was diagnosed with small cell lung
> cancer last December -- almost exactly a year ago.  Small cell is a
> particularly virulent type of cancer -- it moves very quickly and is
> in that it jumps from organ to organ with great speed and deadliness. 
> diagnosis devasted me and my husband.  The doctor said I had only a 35%
> chance of surviving.  She didn't say how long.  Because the cancer was
> confined to one lung, I was accepted into a clinical trial and given very
> aggressive chemotherapy and radiation.  I was very sick, and wouldn't
> to go through it again, but I would do it, if the results were the same. 
> read Bernie Siegel's books, went to a cancer support group, leaned
> on my family for love and support, and kept my faith in God strong.  In
> March I was told that the cancer was gone and that I now had an 80%
> of surviving for more than five years.  If I have no recurrence within a
> two
> year period, they will consider me completely cured.  This just does not
> happen with small cell lung cancer, but it did!  Even my doctors were
> amazed!  There are quite a few of us on this forum with lung cancer --
> of us with small cell -- the rest with the other types.  You will get
> educated answers and a lot of support from us.  Let us help you and your
> father.  Our Lillian and Marty are our researchers -- the rest of us
> support
> each other and offer suggestions.  Let us know what type of cancer your
> father has, the location, and the recommended treatment.  Do this asap,
> you will be amazed at the response!  Welcome.  Kathy in Boise
> > -----Original Message-----
> > From:	pj mcwilliams []
> > Sent:	Saturday, December 12, 1998 8:09 PM
> > To:
> > Subject:	[MOL] IS HERE HOPE 
> > 
> > i hope someone out here can help dad has lung cancer and he is
> > 54 yrs old .the doctors are saying he only has months to live .me and
> > family are having a very hard time dealing with this ..we keep hoping
> > praying that they could be wrong .we know that the cancer will
> > get him ,but i have heard stories about people that have been told by
> > doctors that they only have a short time to live and end up living for
> > years this possiable .me and my family need  help ..can onyone out
> > there help us    
> > 
> > sincerly     
> > paul mcwilliams  << File: ATT00027.html >> 
> ------------------------------------------------------------------------
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