I just saw your messages and wanted to make sure you get the information to
help in making these decisions. Two things you may wish to check into is
radio surgery SRS and Missile Base by Stanly Orders of N.Y. #
(516)522-2727. Both parents should get a second opinion and there are some
wonderful outstanding cancer centers and doctors here in the States. If a
patient needs transportation that too can be arranged. Only go with the
best there is and keep in mind that a doctor can only do a therapy that is
offered at the hospital they are connected with. So with this knowledge,
good luck, know your parents have our prayers and here is some really good
sites for you. Your friend, lillian
---WELCOME TO YOUR MOL CANCER FORUM
Here you will meet a wonderful caring group of individuals who are
cancering or who are loved ones and friends being advocates for those
cancering.
Individuals in this group are not in the medical professional field.
Therefore,we do not
endorse a treatment, drug or product. Our people combined do have many
year's of
accumulated knowledge and expierence, who come from all walks in life and
are able to
lend tremendous assistance to help you walk through this journey.
There are a few matters of importance to address.
It is the general assumption of the group that one can use alternative
treatments (with your
doctors permission) in conjunction with traditional therapy.
We feel that an individual who has had testing and is returning to the
doctor should take
someone with them as an extra set of ears.
It must be remembered that this is a most stressful time for you. We also
agree that a
second or even a third opinion is healthy. One needs to shop for the right
doctor for them;
as each of us are so different not only in personality; but our bodies
react differently.
You should be seeking nothing but the best doctors and hospital, remember
this is your life
and you want to be in control. The best way to be in control is to acquire
all the information
needed for your particular cancer; so that you and your doctor can descide
the best
treatment for you.
We find stress is our worse enemy, it is so important to remove yourself
from stressful
situations and non positive thinkers.
There are so many new drugs and treatments our there for most cancers that
lend hope to
all.
Be prepared for you doctors visits with questions. Should the doctor
interrupt you while
you are questioning explain that you have more questions. Make sure the
doctor speaks to
you in lay terms and that he is positive also.
Too often the doctor will give a gloomy statistical report, thus taking
hope away from the
patient and we find so many people who far out live the guess of any
doctor. Last; but
never least make sure that you eat healthy and that you keep your immune
system built up.
Again, we are here for you, we are a place of compassionate comfort, a
place you can rant
and rave knowing that we too have done that. A place of shelter; whereas
all of us know
what you are going through. Your friends of the MOL CANCER FORUM
TRADITIONAL SITES
National Cancer Institute http://rex.nci.nih.gov
Univ of Penn http://cancer.med.upenn.edu
Cancer Notes on the Net http://www.cancernews.com
Medicine On Line http://www.meds.com
MD Anderson http://www.mdanderson.org
Mem. Sloan-Kettering http://www.mskcc.org
ALTERNATIVE MEDICINE SITES
www.canceranswers.com
85% CancerAnswers - Alternative Treatments
84% Cancer Information -Alternative Treatments
www.chiro.org
84% CANCER TREATMENTS/ ALTERNATIVE
84% Alternative Remedies for Cancer and other diseases.
www.meds.com
84% Re: Alternative cancer treatments [00299]
83% 5. Internet Resources on Cancer
See what the doctor says on alternative meds.
http:www.quackwatch.com/index.html.
MEDICAL DICTIONARIES
omd@www.graylab.ac.uk
http://www.consearch.org.
BOOKS
"50 Esential Things to Do When the Doctor
Says it is Cancer", Greg Anderson
Dr. Bernie Siegels "Love, Medicine and Miracles"
Dr. Carl Simontons "The Healing Journey"
Anne Frahms "Cancer Battle Plan"
Greg Andersons "50 Essential Things to Do When the Diagnosis is Cancer"
Resources: Support Services: Transportation & Lodging
TRANSPORTATION & LODGING
Air Care Alliance
4620 Haygood Road, Suite 8
Virginia Beach, VA 23455
(800)296-1217 (National Patient Air Transport Helpline)
(757)318-9107 FAX
E-mail: mailto:aircarea@aol.com
Web site: http://www.angelflightfla.org/
A trade organization providing air transportation to ambulatory and
medically stable people.
AirLifeLine
6133 Freeport Boulevard
Sacramento, CA 95822
(916)429-2500
(800)446-1231
(916)429-2166 FAX
E-mail: mailto:staff@airlifeline.org
Web site: http://www.airlifeline.org/
Provides cost-assisted emergency medical transportation.
Corporate Angel Network
Westchester County Airport, 1 Loop Road
White Plains, NY 10604
(914)328-1313
E-mail: mailto:info@corpangelnetwork.org
Web site: http://www.corpangelnetwork.org/
Provides free plane transportation for cancer patients undergoing treatment
from recognized cancer treatment centers.
National Association of Hospital Hospitality Houses
4915 Auburn Avenue
Bethesda, MD 20814
(800)542-9730
(301)961-3094
E-mail: mailto:nahhh@aol.com
Web site: http://www.visit-usa.com/hhh
Provides information on away from home lodging for patients and families.
National Patient Air Transport Helpline
P.O. Box 1940
Manassas, VA 22110
(800)296-1217
E-mail: mailto:npathmsg@aol.com
Web site: http://www.npath.org/
Provides referrals for charitable and discounted patient medical air
transport services.
BONE MARROW,TISSUE & ORGAN DONOR
Bone Marrow Transplant Newsletter
1985 Spruce Avenue
Highland Park, IL 60035
(847)831-1913
(847)831-1943 FAX
E-mail: mailto:help@bmtnews.org
Web site: http://www.bmtnews.org/
Publishes quarterly newsletter for bone marrow peripheral stem cell
transplant patients; provides patient-to-survivor telephone link.
Bone Marrow Transplant Family Support Network
P.O. Box 845
Avon, CT 06001
(800)826-9376
Provides a telephone support network, family counseling and education, peer
groups and insurance information for BMT patients and families.
Living Bank
P.O. Box 6725
Houston, TX 77265
(800)528-2971
(713)528-2971
(713)961-0979 FAX
Promotes and facilitates organ and tissue donor commitments.
National Marrow Donor Program
3433 Broadway Street NE, Suite 500
Minneapolis, MN 55413
(612)627-5800
(800)526-7809
(800)MARROW2 (Donor Information)
Web site: http://www.marrow.org/
Maintains a registry of bone marrow donors; provides donor recruitment
information.
National Bone Marrow Transplant Link (BMT Link)
29209 Northwester Hwy. #624
Southfield, MI 48034
(800)LINK-BMT
(810)932-8483 FAX
Web site: http://comnet.org/nbmtlink
Provides information and support to BMT patients and families; promotes
public understanding and research for BMT issues.
Organ Transplant Fund
1102 Brookfield, Suite 202
Memphis, TN 38119
(901)684-1697
(800)489-3863
(901)684-1128 FAX
E-mail: mailto:atfnatl@aol.com
Web site: http://www.otf.org/
Provides financial and insurance assistance, patient advocacy and housing
information during treatment for transplant recipients and their families.
Transplant Foundation
8002 Discovery Drive, Suite 310
Richmond, VA 23229
(804)285-5115
(804)288-2408 FAX
Provides financial assistance to offset cost of post-transplant
medications; acts as clearinghouse for transplant information.
CHILDRENS HOPES & DREAMS FONDATION
1-201-361-7366
HOME HEALTH CARE
National Association for Home Care
c/o Consumer Guide
P.O. Box 14241
Washington, DC 20003
(202)547-7424
(202)547-3540 FAX
Web site: http://www.nahc.org/
Trade association providing referrals to home or hospice care.
The Oley Foundation
214 Hun Memorial, A-23
Albany Medical Center
Albany, NY 12208-3478
(518)262-5079
(800)776-OLEY
E-mail: mailto:taylor@ccgateway.amc.edu
Web site: http://www.wizvax.net/oleyfdn
Support for home enteral and/or parental nutrition therapy.
Olsten HealthCare
175 Broadhollow Road
Melville, NY 11747
(516)844-7800
(800)66-NURSE
Web site: http://www.olsten.com/
Provides home health care services including chemotherapy, nutrition and
hydration
therapies, pain management, physical therapy, and general nursing
services.
Visiting Nurse Association of America National Office
3801 East Florida Avenue, Suite 900
Denver, CO 80210
(888)866-8773
(303)753-0218
Provides skilled nursing and assisted living services.
Amherst H. Wilder Foundation
919 Lafond Avenue
St. Paul, MN 55104
(612)642-4000
(612)642-4068 FAX
Web site: http://www.wilder.org/
Provides assisted living and nursing home care services for the elderly in
the
Minneapolis area.
Childrens' Hospice
2202 Mt. Vernon Ave., Suite 3C
Alexandria, VA 22301
(703)684-0330
(703)684-0226 FAX
E-mail: mailto:chiorg@aol.com
Web site: http://www.chionline.org/
Provides information and referral services,counseling, support groups,
education, and
research aimed at improving hospice care for children.
Choice in Dying
1035 30th Street NW
Washington, DC 20007
(202)338-9790
(202)338-0242 FAX
Web site:http://www.choices.org/
Advocacy organization for end-of-life rights;provides legal counseling and
information on
end-of-life decisions.
National Association for Home Care
c/o Consumer Guide
P.O. Box 14241
Washington, DC 20003
(202)547-7424
(202)547-3540 FAX
Web site: http://www.nahc.org/
Trade association that provides referrals to local hospice organizations.
Hospice Education Institute/Hospicelink
190 Westbrook Road
Essex, CT 06426
(860)767-1620
(800)331-1620
(860)767-2746 FAX
E-mail: mailto:hospiceall@aol.com
Provides information and referral services,education, advice and
assistance regarding
hospice and palliative care.
National Hospice Organization
1901 N. Moore Street, Suite 901
Arlington, VA 22209
(703)243-5900
(800)658-8898
(703)525-5762 FAX
E-mail: mailto:drsno@cais.com
Web site: http://www.nho.org/
Provides information and referrals to local hospitals, patient advocacy
and professional
education.
National Institute for Jewish Hospice
8723 Alden Drive, Suite 219
Los Angeles, CA 90048
(310)854-3036
(213)HOSPICE
(800)446-4448
Provides free telephone counseling and referrals; trains professionals in
the art of helping the
Jewish terminally ill.
RESOURCES/ LEGAL
Americans with Disabilities Act
U.S. Equal Employment Opportunity Commission
Office of Legal Council
1801 L Street NW
Washington, DC 20507
(202)663-4503
Provides information and legal assistance regarding discrimination due to
illness or disability
Family Medical leave Act
U.S. Department of Labor
Wage & Hour Division
200 Constitution Avenue NW
Washington, DC 20210
(202)219-8412
Provides information on employment rights during medical leave due to
illness
Support Services: INSURANCE & FINANCE
American Association of Health Plans
Membership Department
129 20th Street NW, Suite 600
Washington, DC 20036
(202)778-3200
Web site: http://www.aahp.org/
Insurance industry trade association that will provide information on
insurance and health care
issues.
Blue Cross and Blue Shield Association
675 North St. Claire Street
Chicago, IL 60601
(312)440-6000
Department of Health and Human Services
Inspector General Hotline
Office of the Inspector General
P.O. Box 23489
Washington, DC 20026
(800)368-5779
U.S. government hotline for complaints regarding Medicare or Medicaid;
provides assistance with
issues of entitlements, benefits, insurance, and community resources.
Disabled American Veterans
807 Main Avenue SW
Washington, DC 20024
(202)554-3501
(202)554-3581 FAX
Web site: http://www.dav.org/
Provides assistance with health benefits for U.S. veterans.
Hill-Burton Free Hospital Care
5600 Fishers Lane, Room 7-47
Rockville, MD 20857
(800)683-0742 Hotline
(301)594-5999 FAX
Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
U.S. government program that can arrange for cost-assisted care for
disadvantaged individuals at
certain medical facilities or hospitals.
National Insurance Consumer Hotline
1001 Pennsylvania Avenue, NW
Washington, DC 20004
(800)942-4242
Provides assistance in finding insurance coverage, information on
insurance issues and a consumer
complaint service.
Support Services: HAIR LOSS
Look Good, Feel Better
The American Cancer Society
(800)395-LOOK
Teaches women who have undergone cancer treatment how to improve
appearance through
cosmetics, wigs, scarfs, etc.
Y-ME WIG
212 West Van Buren Street, 4th Floor
Chicago, IL 60607
(800)221-2141
(312)294-8598 FAX
Web site: http://www.y-me.org/
Provides donated wigs free of charge.
This MOL FORUM is intended to assist people with cancer, their family,
friends and caregivers find the information to help them make decisions
regarding treatment and management of their disease. Nothing presented
herein should be construed as a substitute for professional advice from a
physician or medical practitioner. Reasonable efforts have been made to
ensure the accuracy of the information provided, but the Mol Forum makes no
warranty , nor endorses any recommendation, practice or product of any
organization or service contained herein.
-------
> From: tammy forrest <joeandtammy@sirus.com>
> To: mol-cancer@lists.meds.com
> Subject: Re: [MOL] IS HERE HOPE
> Date: Tuesday, December 29, 1998 7:16 PM
>
> Dear Paul
>
> my mother is going through treatment for small cell cancer in the lung
> area. did you have to have radiation to the brain region? they are
> recommending this for my mother. she is not sure what to do?
>
> ----------
> From: kcorrigan@chgw.com
> To: mol-cancer@lists.meds.com
> Subject: RE: [MOL] IS HERE HOPE
> Date: Tuesday, December 29, 1998 2:55 PM
>
> Dear Paul: I am 56 years old and I was diagnosed with small cell lung
> cancer last December -- almost exactly a year ago. Small cell is a
> particularly virulent type of cancer -- it moves very quickly and is
nasty,
> in that it jumps from organ to organ with great speed and deadliness.
The
> diagnosis devasted me and my husband. The doctor said I had only a 35%
> chance of surviving. She didn't say how long. Because the cancer was
> confined to one lung, I was accepted into a clinical trial and given very
> aggressive chemotherapy and radiation. I was very sick, and wouldn't
want
> to go through it again, but I would do it, if the results were the same.
I
> read Bernie Siegel's books, went to a cancer support group, leaned
heavily
> on my family for love and support, and kept my faith in God strong. In
> March I was told that the cancer was gone and that I now had an 80%
chance
> of surviving for more than five years. If I have no recurrence within a
> two
> year period, they will consider me completely cured. This just does not
> happen with small cell lung cancer, but it did! Even my doctors were
> amazed! There are quite a few of us on this forum with lung cancer --
two
> of us with small cell -- the rest with the other types. You will get
> educated answers and a lot of support from us. Let us help you and your
> father. Our Lillian and Marty are our researchers -- the rest of us
> support
> each other and offer suggestions. Let us know what type of cancer your
> father has, the location, and the recommended treatment. Do this asap,
and
> you will be amazed at the response! Welcome. Kathy in Boise
>
> > -----Original Message-----
> > From: pj mcwilliams [SMTP:pj@nb.sympatico.ca]
> > Sent: Saturday, December 12, 1998 8:09 PM
> > To: mol-cancer@lists.meds.com
> > Subject: [MOL] IS HERE HOPE
> >
> > i hope someone out here can help me.my dad has lung cancer and he is
only
> > 54 yrs old .the doctors are saying he only has months to live .me and
my
> > family are having a very hard time dealing with this ..we keep hoping
and
> > praying that they could be wrong .we know that the cancer will
eventualy
> > get him ,but i have heard stories about people that have been told by
> > doctors that they only have a short time to live and end up living for
> > years ..is this possiable .me and my family need help ..can onyone out
> > there help us
> >
> > sincerly
> > paul mcwilliams << File: ATT00027.html >>
>
> ------------------------------------------------------------------------
> This is an automatically-generated notice. If you'd like to be removed
> from the mailing list, please visit the Medicine-On-Line Discussion Forum
> at <http://www.meds.com/con_faq.html>, or send an email message to:
> majordomo@lists.meds.com
> with the subject line blank and the body of the message containing the
line:
> unsubscribe mol-cancer your-email-address
> where the phrase your-email-address is replaced with your actual email
> address.
> ------------------------------------------------------------------------
------------------------------------------------------------------------
This is an automatically-generated notice. If you'd like to be removed
from the mailing list, please visit the Medicine-On-Line Discussion Forum
at <http://www.meds.com/con_faq.html>, or send an email message to:
majordomo@lists.meds.com
with the subject line blank and the body of the message containing the line:
unsubscribe mol-cancer your-email-address
where the phrase your-email-address is replaced with your actual email
address.
------------------------------------------------------------------------
