Re: [MOL] Peritoneal Cancer/Ovarian-Very Important, Molers Read Please ! [02506] Medicine On Line


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Re: [MOL] Peritoneal Cancer/Ovarian-Very Important, Molers Read Please !



Oh Gosh Friend, Jenny @

----------
> From: John C. Montgomery <monty48@erinet.com>
> To: mol-cancer@lists.meds.com
> Subject: Re: [MOL] Peritoneal Cancer/Ovarian-Very Important, Molers Read
Please !
> Date: Wednesday, November 18, 1998 3:47 PM
> 
> Lillian, do you know where this letter originated?  This is the type of
> cancer that I have and I can never find anything out about it.  I would
> really like to hear from the person that has this as a primary.
> Did I miss your birthday?  Shame on me!  Hope that it was a happy one! 
(I
> have been off line for some reason for several days and am just getting
> caught up on the mail.)
> ((HUGS))  Mary Ann
> 
> 
> 
> 
> Forwarded to me from a friend:
> >
> >I want to tell you about Primary Peritoneal Cancer.  This cancer has
> >only
> >recently been identified as its OWN type of cancer; but it is,
> >essentially,
> >Ovarian Cancer.  Both types of cancer are diagnosed in the same way
> >(with the
> >"tumor marker" CA-125 blood test), and they are treated
> >in the same way (surgery to remove the primary tumor and then
> >chemotherapy
> >with Taxol and Carboplatin).
> >
> >Having gone through this ordeal, I want to save others from the same
> >fate. That is why I am sending this message to you and hope you will
> >print
> >it and give it or send it via e-mail to everybody you know.
> >
> >One thing I have learned is that each of us must take TOTAL
> >responsibility for
> >our own health care.  I thought I had done that because I always had an
> >annual
> >physical, had my annual mammogram and PAP smear, did monthly Self Breast
> >Exam,
> >went to the dentist at least twice/year, etc.
> >>
> >I even insisted on a sigmoidoscopy and a bone density test last year.
> >When I had a total hysterectomy in 1993, I thought that I did not have
> >to
> >worry about getting any of the female reproductive organ cancers.
> >LITTLE DID I
> >KNOW! I don't have ovaries (and they were HEALTHY when they were
> >removed!), but I have what is essentially ovarian cancer.  Strange,
> >isn't it?
> >>
> >These are just SOME of the things our Doctors never tell us. ONE OUT OF
> >EVERY 55 WOMEN WILL GET OVARIAN OR PRIMARY PERITONEAL CANCER! THE
> >"CLASSIC" SYMPTOMS ARE  AN ABDOMEN THAT RATHER SUDDENLY ENLARGES AND
> >CONSTIPATION AND/OR DIARRHEA.
> >>
> > I had these classic symptoms and went to the Doctor.  Because these
> >symptoms seemed to be "abdominal," I went to a gastroenterologist.  He
> >ran
> >tests that were designed to determine whether there was a bacterial
> >infection; these tests were negative, and I was diagnosed with
> >"Irritable
> >Bowel Syndrome."
> >>
> >I guess I would have accepted this diagnosis had it not been for my
> >enlarged abdomen.  I swear to you, it looked like I was 4-5 months
> >pregnant!  I, therefore, insisted on more tests.  They took an X-Ray of
> >my
> >abdomen; it was negative.  I was, again, assured that I had Irritable
> >Bowel Syndrome and was encouraged to go on my scheduled month-long trip
> >to
> >Europe.  I couldn't wear any of my slacks or shorts because I couldn't
> >get
> >them buttoned, and I KNEW something was radically wrong.  I INSISTED on
> >more tests, and they (reluctantly) scheduled me for a CT-Scan (just to
> >shut me up, I think). This is what I mean by taking charge of our own
> >health
> >care.
> >>
> >The CT-Scan showed a lot of fluid in my abdomen (NOT normal!).  Needless
> >
> >to say, I had to cancel my trip and have FIVE POUNDS of fluid drawn off
> >at
> >the hospital (not a pleasant procedure, I assure you, but NOTHING
> >compared
> >to what was ahead of me).  Tests revealed cancer cells in the fluid.
> >>
> >Finally, Finally, finally,the Doctor ran a CA-125 blood test and I was
> >properly diagnosed. I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER AND,
> >YET, THIS SIMPLE CA-125 BLOOD TEST HAD NEVER BEEN RUN ON ME  NOT AS PART
> >OF MY ANNUAL PHYSICAL EXAM AND NOT WHEN I WAS SYMPTOMATIC.  THIS IS AN
> >INEXPENSIVE AND SIMPLE BLOOD TEST!!!
> >>
> >PLEASE, PLEASE, P-L-E-A-S-E TELL ALL YOUR FEMALE FRIENDS AND RELATIVES
> >TO INSIST ON A CA-125 BLOOD TEST EVERY YEAR AS PART OF THEIR ANNUAL
> >PHYSICAL EXAMS.  BE FOREWARNED THAT THEIR DOCTORS MIGHT TRY TO TALK THEM
> >OUT OF IT, SAYING "IT ISN'T NECESSARY."  BELIEVE ME, HAD I KNOWN THEN
> >WHAT I KNOW  NOW, WE WOULD HAVE CAUGHT MY CANCER MUCH EARLIER (BEFORE IT
> >WAS A STAGE 3 CANCER)!!! INSIST ON THE CA-125 BLOOD TEST; DON'T TAKE
> >"NO" FOR AN ANSWER.
> >>
> >THE NORMAL RANGE FOR A CA-125 BLOOD TEST IS BETWEEN ZERO AND 35.  (MINE
> >WAS 754 ... THAT'S RIGHT, 754!)  IF THE NUMBER IS SLIGHTLY ELEVATED,
> >YOU  CAN HAVE ANOTHER ONE DONE IN THREE OR SIX MONTHS AND KEEP A CLOSE
> >EYE ON  IT JUST LIKE WOMEN DO WHEN THEY HAVE FIBROID TUMORS OR WHEN MEN
> >HAVE A SLIGHTLY ELEVATED PSA TEST (PROSTATE SPECIFIC ANTIGENS) THAT
> >HELPS  DIAGNOSE PROSTATE CANCER. HAVING THE CA-125 TEST DONE ANNUALLY
> >CAN ALERT  YOU EARLY, AND THAT'S THE GOAL IN DIAGNOSING ANY TYPE OF
> >CANCER -- CATCH  IT EARLY.
> >>
> > I hope I haven't bored you with all of this.  But I hope I HAVE scared
> >you enough to motivate you to action.  Do YOU know 55 women?  If so, at
> >least one of them will have this VERY AGGRESSIVE cancer -- and maybe,
> >just
> >maybe, it will be YOU.  I hope not.
> >
> >Please, go to your Doctor THIS WEEK and insist on a CA-125 test and have
> >
> >one EVERY YEAR for the rest of your life.  And forward this message to
> >every woman you know and tell all of your female family members and
> >friends.
> >
> >            As the Nike ads say, "JUST DO IT!"
> >
> > Please don't think youth will protect you, either.  Though the median
> >age for this cancer is 56 (and, guess what, I'm exactly 56), women as
> >young as
> >22 have it.  Age is not a factor.
> >
> >
> >
> >
> >
> >
> >
> >
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> 
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