Re: [MOL] URGENT: Child with leukemia-- need advice/guidance! [00598] Medicine On Line


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Re: [MOL] URGENT: Child with leukemia-- need advice/guidance!



Chris,

How very kind of you to post about your godchild.    Unfortunately I have
no advice or guidance, but please know that I am with the child in thought
and prayer.

Suzanne


At 09:15 PM 11/2/98 EST, you wrote:
>My friend asked that I search the internet for some information, advise and
>opinions. 
>
>My godchild Paulie was diagnosed with leukemia at 3 years old.  He had
>rigorous chemo treatments and went into remission only for it to come back
>within 6 months time.   Full chemo was started over again from scratch and a
>request was put in to find a donor for bone marrow.     After a long search a
>perfect match came up and Paulie headed north to Milwaukee, WI. to get the
>transplant.    GREAT.... but then more bad news.   Almost 4 years of chemo
has
>done damage to his liver and the leukemia specialists in Seattle have told my
>friend that she much chose which course to take next.   She doesn't know what
>to do, these are her 2 choices: 
>
>Go ahead with the bone marrow transplant, but Paulie has a 50/50 chance of
not
>making it.   Even if he just starts to show signs of liver failure, they said
>they cannot do anything to save him.
>
>Option 2 is to finish this bout of chemo and wait for a new remission
(about 2
>years time), but he has only a 25% percent chance that the leukemia WON'T
come
>back.   IF the leukemia does come back, even more damage would have been done
>to his liver and the chance of a bone marrow transplant will be zero. 
>
>Where can we go for more advise or specialist opinions?   We don't know what
>to do next or how to come to a decision. 
>
>Any advise, insight, or information is need ASAP.   The doctors told her to
>think about it for a few days, so help is need now. 
>
>Thank you all for reading this, and PLEASE write back to me directly to get
>what you write faster. 
>
>Chris
>
>**  Feel free to contact my friend directly about her son:  Erika
>847-967-5231
>
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