Suzanne, Darling: I am so, so sorry to hear that you're having so much
trouble. I wish I could breathe for you! No wonder you're feeling lousy!
I thought I had it bad when I was on my chemo! I had a fraction of the
problems you've had, and the Taxol worked for me. Please keep in touch with
us. We're all concerned about you. -- Kathy in Boise
-----Original Message-----
From: suzanne1@erols.com <suzanne1@erols.com>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Saturday, October 31, 1998 7:52 AM
Subject: RE: [MOL]Kathy
>Kathy,
>
>Re my new regime - because the Taxol and Navelbine are not working and I'm
>getting worse rather than better or even staying the same, yesterday I
>began a new regime with two different chemo's.
>
>One week a month I will have a pump with me at all times dispensing
>Topetecan. At the end of that week I will take orally 3 times a day a drug
>called Atopocide. (This drug is not shown in my reference book so I need
>to do a little homework to find out more about it).
>
>Topetecan has a long list of side effects, though my doctor tells me that
>he really doesn't see most of them in his practice. Hope this is true as
>the list of possible side effects is rather long! :)
>
>Along with the other tests I took two weeks ago was the pulmonary function
>test. No wonder I am so exhausted and lose my breath all the time. I am
>right at the borderline where I need oxygen to live. I am okay when
>perfectly still, but my lungs quickly use up any oxygen the moment I exert
>myself and my lungs can't replace it fast enough. I was offered oxygen for
>when I moved around, but wouldn't take it. I hate stuff hanging off me -
>rarely wear necklaces or bracelets, for example, and if my body gets
>accustomed to the assistance it may not make itself work as hard, if that
>makes sense.
>
>Enough bad news - I am now ready for the good news, please! heheheh
>
>Thank you for asking, Kathy.
>
>Suzanne
>
>Thank you for asking.
>
>
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