[MOL] Myelofibrosis/Response [02439] Medicine On Line

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[MOL] Myelofibrosis/Response

Pls. know that we are here to help you in any way possible.  Your friend,


       Here you will meet a wonderful caring group of individuals who are 
       cancering or who are loved ones  and friends being  advocates for
those cancering. 
       Individuals in this group are not in the medical professional field.
 Therefore,we do not 
       endorse a treatment, drug or product.  Our people combined do have
many year's of 
       accumulated knowledge and expierence, who come from all walks in
life and are able to 
       lend tremendous assistance to help you walk through this journey. 

       There are a few matters of importance to address. 
       It is the general assumption of the group that one can use
alternative treatments (with your 
       doctors permission) in conjunction with traditional therapy. 
       We feel that an individual who has had testing and is returning to
the doctor should take 
       someone with them as an extra set of ears. 
       It must be remembered that this is a most stressful time for you. 
We also agree that a 
       second or even a third opinion is healthy.  One needs to shop for
the right doctor for them; 
       as each of us are so different not only in personality; but our
bodies react differently. 
       You should be seeking nothing but the best doctors and hospital,
remember this is your life 
       and you want to be in control.  The best way to be in control is to
acquire all the information 
       needed for your particular cancer; so that you and your doctor can
descide the best 
       treatment for you. 
       We find stress is our worse enemy, it is so important to remove
yourself from stressful 
       situations and non positive thinkers. 
       There are so many new drugs and treatments our there for most
cancers that lend hope to 
       Be prepared for you doctors visits with questions.  Should the
doctor interrupt you while 
       you are questioning explain that you have more questions.  Make sure
the doctor speaks to 
       you in lay terms and that he is positive also. 
       Too often the doctor will give a gloomy statistical report, thus
taking  hope away from the 
       patient and we find so many people who far out live the guess of any
doctor.  Last; but 
       never least make sure that you eat healthy and that you keep your
immune system built up. 
       Again, we are here for you, we are a place of compassionate comfort,
a place you can rant 
       and rave knowing that we too have done that.  A place of shelter;
whereas all of us know 
       what you are going through.  Your friends of the MOL CANCER FORUM 

                                       TRADITIONAL SITES 

        National Cancer Institute      http://rex.nci.nih.gov 
       Univ of Penn                         http://cancer.med.upenn.edu 
       Cancer Notes on the Net      http://www.cancernews.com 
       Medicine On Line                 http://www.meds.com 
       MD Anderson                       http://www.mdanderson.org 
       Mem. Sloan-Kettering          http://www.mskcc.org 

       Alternative Medicine 

             85% CancerAnswers - Alternative Treatments 
             84% Cancer Information -Alternative Treatments 

             84% Alternative Remedies for Cancer and other diseases. 

             84% Re: Alternative cancer treatments [00299] 
             83% 5. Internet Resources on Cancer 


         BOOKS                                "50 Esential Things to Do
When the Doctor 
                                                         Says it is
Cancer", Greg Anderson 

                                    HOME HEALTH CARE 

       National Association for Home Care 
       c/o Consumer Guide 
       P.O. Box 14241 
       Washington, DC 20003 
       (202)547-3540 FAX 
       Web site: http://www.nahc.org/ 
       Trade association providing referrals to home or hospice care. 

       The Oley Foundation 
       214 Hun Memorial, A-23 
       Albany Medical Center 
       Albany, NY 12208-3478 
       E-mail: mailto:taylor@ccgateway.amc.edu 
       Web site: http://www.wizvax.net/oleyfdn 
       Support for home enteral and/or parental nutrition therapy. 

       Olsten HealthCare 
       175 Broadhollow Road 
       Melville, NY 11747 
       Web site: http://www.olsten.com/ 
       Provides home health care services including chemotherapy, nutrition
and hydration 
       therapies, pain management, physical therapy, and general nursing

       Visiting Nurse Association of America National Office 
       3801 East Florida Avenue, Suite 900 
       Denver, CO 80210 
       Provides skilled nursing and assisted living services. 

       Amherst H. Wilder Foundation 
       919 Lafond Avenue 
       St. Paul, MN 55104 
       (612)642-4068 FAX 
       Web site: http://www.wilder.org/ 
       Provides assisted living and nursing home care services for the
elderly in the 
       Minneapolis area. 

       Childrens' Hospice 
       2202 Mt. Vernon Ave., Suite 3C 
       Alexandria, VA 22301 
       (703)684-0226 FAX 
       E-mail: mailto:chiorg@aol.com 
       Web site: http://www.chionline.org/ 
       Provides information and referral services,counseling, support
groups, education, and 
       research aimed at improving hospice care for children. 

       Choice in Dying 
       1035 30th Street NW 
       Washington, DC 20007 
       (202)338-0242 FAX 
       Web site:http://www.choices.org/ 
       Advocacy organization for end-of-life rights;provides legal
counseling and information on 
       end-of-life decisions. 

       National Association for Home Care 
       c/o Consumer Guide 
       P.O. Box 14241 
       Washington, DC 20003 
       (202)547-3540 FAX 
       Web site: http://www.nahc.org/ 
       Trade association that provides referrals to local hospice

       Hospice Education Institute/Hospicelink 
       190 Westbrook Road 
       Essex, CT 06426 
       (860)767-2746 FAX 
       E-mail: mailto:hospiceall@aol.com 
       Provides information and referral services,education, advice and
assistance regarding 
       hospice and palliative care. 

       National Hospice Organization 
       1901 N. Moore Street, Suite 901 
       Arlington, VA 22209 
       (703)525-5762 FAX 
       E-mail: mailto:drsno@cais.com 
       Web site: http://www.nho.org/ 
       Provides information and referrals to local hospitals, patient
advocacy and professional 

       National Institute for Jewish Hospice 
       8723 Alden Drive, Suite 219 
       Los Angeles, CA 90048 
       Provides free telephone counseling and referrals; trains
professionals in the art of helping the 
       Jewish terminally ill. 
                                               RESOURCES/ LEGAL 

       Americans with Disabilities Act 
       U.S. Equal Employment Opportunity Commission 
       Office of Legal Council 
       1801 L Street NW 
       Washington, DC 20507 
       Provides information and legal assistance regarding discrimination
due to illness or disability 

       Family Medical leave Act 
       U.S. Department of Labor 
       Wage & Hour Division 
       200 Constitution Avenue NW 
       Washington, DC 20210 
       Provides information on employment rights during medical leave due
to illness 

                           Support Services: Finance & Insurance 

  American Association of Health Plans 
  Membership Department 
  129 20th Street NW, Suite 600 
  Washington, DC 20036 
  Web site: http://www.aahp.org/ 
  Insurance industry trade association that will provide information on
insurance and health care 

  Blue Cross and Blue Shield Association 
  675 North St. Claire Street 
  Chicago, IL 60601 

  Department of Health and Human Services 
  Inspector General Hotline 
  Office of the Inspector General 
  P.O. Box 23489 
  Washington, DC 20026 
  U.S. government hotline for complaints regarding Medicare or Medicaid;
provides assistance with 
  issues of entitlements, benefits, insurance, and community resources. 

  Disabled American Veterans 
  807 Main Avenue SW 
  Washington, DC 20024 
  (202)554-3581 FAX 
  Web site: http://www.dav.org/ 
  Provides assistance with health benefits for U.S. veterans. 

  Hill-Burton Free Hospital Care 
  5600 Fishers Lane, Room 7-47 
  Rockville, MD 20857 
  (800)683-0742 Hotline 
  (301)594-5999 FAX 
  Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm 
  U.S. government program that can arrange for cost-assisted care for
disadvantaged individuals at 
  certain medical facilities or hospitals. 

  National Insurance Consumer Hotline 
  1001 Pennsylvania Avenue, NW 
  Washington, DC 20004 
  Provides assistance in finding insurance coverage, information on
insurance issues and a consumer 
  complaint service. 

                                              SUPPORT SERVICE TRAVEL 


                                               Support Services: Hair Loss 

  Look Good, Feel Better 
  The American Cancer Society 
  Teaches women who have undergone cancer treatment how to improve
appearance through 
  cosmetics, wigs, scarfs, etc. 

  212 West Van Buren Street, 4th Floor 
  Chicago, IL 60607 
  (312)294-8598 FAX 
  Web site: http://www.y-me.org/ 
  Provides donated wigs free of charge. 

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