Re: [MOL] Hi, Greg here, new to MOL (NHL patient) [01255] Medicine On Line


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Re: [MOL] Hi, Greg here, new to MOL (NHL patient)



Dear Kathy,

What stage is or was your cancer in.  Did you do chemo first then
radiation?  Did the NCI pay for your clinical trial?

Mary
> 
> Mary:  I had chemo and radiation both.  The chemo was a combination of
> Taxol, Cisplatin, and something else (I can't remember).  It was very
> aggressive.  Then I had six weeks of radiation -- every day.  The
> trial was out of the University of Colorado.  They monitored me very
> closely.  I was very fortunate to have been accepted, even though I
> thought they were going to kill me a couple of times.  Clinical trials
> are wonderful, if you're willing to be a guinea pig -- and I think
> most cancer patients are! -- Kathy in Boise.
> 
>      -----Original Message-----
>      From:   Mary Furfaro [SMTP:furfaro@hometel.com]
>      Sent:   Friday, October 09, 1998 6:45 PM
>      To:     mol-cancer@lists.meds.com
>      Subject:        Re: [MOL] Hi, Greg here, new to MOL (NHL patient)
> 
>      Dear Kathy,
> 
>      What type of clinical trial were you on?  Was it chemo and
>      radiation
>      or just chemo?  Angelo has had two different types of combination
> 
>      chemo which didn't help at all.  Now he is getting ready for
>      radiation.
>      After radiation we are thinking about going to NCI in Maryland
>      for
>      a clinical trial they are doing there.
> 
>      Any ino about your trial would be a great help to us, as we know
>      very
>      little about how they work.
> 
>      I am so glad you are doing so well.  We will pray that you
>      continue to
>      do so.  Thankyou in advance for any information you can give.
> 
>      Love,
>      Mary
>      >
>      > Mary:  As I mentioned earlier, I have small cell lung cancer
>      (limited
>      > stage), and am now in remission.  As you probably know,
>      however, small
>      > cell lung cancer almost always comes back within three years,
>      so I may
>      > be up against this again in the future.  It has a tendency to
>      spread
>      > to the brain first, and then the liver.  My oncologist feels I
>      have an
>      > 80% chance of being cured, though, and this because I was on a
>      > clinical trial.  I hope your husband is able to go through a
>      clinical
>      > trial.  They're rough on you, but they can do amazing things.
>      I went
>      > through the radiation and the chemotherapy.  If you or Angelo
>      have any
>      > questions about the radiation, I'd be happy to help out if I
>      can.
>      > It's been five months since my last chemo, and I'm still clean
>      and
>      > feeling very good.  I will pray for this for Angelo! -- Kathy
>      >
>      >      -----Original Message-----
>      >      From:   Mary Furfaro [SMTP:furfaro@hometel.com]
>      >      Sent:   Friday, October 09, 1998 7:42 AM
>      >      To:     mol-cancer@lists.meds.com
>      >      Subject:        Re: [MOL] Hi, Greg here, new to MOL (NHL
>      patient)
>      >
>      >      Hi Greg,
>      >
>      >      Welcome aboard!  My husband Angelo has nonsmall cell lung
>      cancer
>      >      stage
>      >      1V.  He is doing pretty well.  He has had 4rounds of chemo
>      which
>      >      he
>      >      failed, meaning it didn't do anything but grow.  Now he is
> 
>      >      getting
>      >      ready to start radiation and possibly a clinical trail
>      later on.
>      >
>      >      This is a group of wonderful caring people who will be
>      more than
>      >      happy to help you or to just talk or just listen.
>      >
>      >      Take care,
>      >      Mary
>      >      >
>      >      > Hello everyone, just wanted to say hi since I'm new to
>      MOL.
>      >      Hope everyone is
>      >      > doing well today.  I'm 25, have non-hodgkin's
>      >      lymphoma/Burkitt's type, stage
>      >      > IV, interested in talking with people with any form of
>      cancer
>      >      though,
>      >      > especially regarding relationship issues.  I'm a good
>      >      listener!      Take
>      >      > care, Greg
>      >      >
>      >
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