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Sylvia: That's wonderful news! Does the hospital have an in-house pharmacist? I imagine they all do. When I was discharged (each time), we would call the pharmacist and he'd come in and explain everything about the medications to my husband and me. My husband wasn't on drugs, so he'd remember. I never did! This was a tremendous help to us. And you know -- I told you I never did weird things while I was on all that medication. I forgot. One night I was expecting my night nurse to come in. I heard her come through the door and I looked down toward the foot of my bed. There was the most beautiful golden retriever I have ever seen. She was wearing a ruffly, white pinafore and had the kindest, sweetest brown eyes. She just sort of puttered around getting stuff for me. It made me feel so good! So, I guess I wasn't all there after all -- but I was happy! Tell Liz if she sees a golden retriever not to worry. Seriously, I'm so glad -- it sounds like she's getting better. Fingers crossed very tight. -- Kathy in Boise.
-----Original Message-----
From: Sylvia Boehme [SMTP:sboehme@hondo.k12.tx.us]
Sent: Tuesday, October 13, 1998 11:35 AM
To: mol-cancer@lists.meds.com
Subject: Re: [MOL] Sylvia
Thanks Kathy,
I just got off the phone with Lizabeth...she sounded so "normal" again
and her husband said that she had eaten all her breakfast. They changed
the med's AGAIN and she didn't know what she was getting when...her
husband didn't write it down...he promised me he would find out before I
got in there tonight. Ya'll light up my life. Thanks.
love, sylvia-Lizabeth's champion
kcorrigan@chgw.com wrote:
>
>
> Sylvia: I agree with Lillian. I do not understand why they're not
> feeding Liz through an IV!!! I gained 12 lbs. in the hospital that
> way -- and I couldn't eat anything at all! When I got out, I felt
> pretty good. My oncologist, however, is absolutely wonderful, and
> since I was on a clinical trial, she tended to sort of hover over me.
> There's nothing wrong with that. One of my nurses, too, was very
> special. She kept her head shaved because most of her patients were
> bald. I can certainly understand your frustration. Some of these
> doctors, particularly the young ones, can be so uncaring and
> arrogant!! Liz should not have to endure this type of neglect. I
> know you'll do what you have to. -- Kathy in Boise
>
> -----Original Message-----
> From: lillian jennings [SMTP:firefly@islc.net]
> Sent: Tuesday, October 13, 1998 10:39 AM
> To: mol-cancer@lists.meds.com
> Subject: Re: [MOL] Sylvia
>
> 1.
> Lizabeth should be getting a feeding solution through an IV.
> 2.
> One is tapered off of steroids; however Lizabeth needs to be on a
> high dossage of steriods right now, again through iv.
> 3.Ativan is given to reduce swelling also; so she needs some of
> this.
> 4. I again urge she get a good internist on her team, remember
> it was the internist that saved my life. The internist will
> monitor all drugs; so that there will not be an inneraction to
> drugs; which often happens.
>
> I urge you to get these messages accross to the
> doctors........love you lillian
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