Dear Dale: It really sounds as though you are really getting some excelent
advice for your therapy. June, one our molers has had radiosurgery, and I hope
she responds to you. She said it went very well. I hope you will keep us
posted on your trials, we could all learn from it. Thanks so much for sharing
with us and I hope that you will continue to do so. Your friend, Lillian
Dale H. McCallon wrote:
> Hi,
>
> I had a tennis ball sized malignant tumor and 16"
> of my ascending colon removed on May 2, 1998. The
> tumor was a poorly differentiated carcinoma. I
> was advanced and several lesions showed on my
> liver, confirmed by needle biopsy. The lesions
> are unresectable at this point.
>
> I took two series of 5FU and leucovorin which
> lasted 13 weeks. I had no response.
>
> I looked into cryotherapy at UCLA Medical Center
> and was rejected due to having too many lesions on
> my liver.
>
> I am currently in an experimental clinical study,
> called CEA Peptide Pulsed Dendric Cell Vaccine,
> at USC in Los Angeles. It involves the extraction
> of my white cells and external treatment to
> supercharge them. A vaccine is developed from the
> newly charged white cells and inoculated back onto
> my system. This process is intended to boost my
> immune system to allow the treated white cells to
> more effectively kill the colon cancer cells on my
> liver. If this is successful and we get shrinkage
> of the lesions, I am looking into RF Radiotherapy
> to debulk and kill the lesions on my liver. This
> is done by the use of probes inserted directly
> through my skin and into the lesions of the liver
> using RF waves to burn the tumors. This procedure
> was developed at Boston Scientific and is now
> available in several cities in the US.
>
> Question: Has anyone had the latter treatment?
> What was it like? How effective was it for you
> and did you require surgery later?
>
> Question: Does anyone with a similar condition to
> mine have any leads on alternative treatments that
> worked for you.
>
> Meanwhile, I continue to look for the next
> treatment in case the current one doesn't work.
> Time is running out.
>
> Thanks in advance for your feedback.
>
>
> --
> Dale H. McCallon
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