Re: [MOL] Pancreatic Cancer [02894] Medicine On Line


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Re: [MOL] Pancreatic Cancer



 Hi Annie and welcome.  I have included some excelent sites for you to explore and acquire the knowledge you need to help your dear aunt. For cancer trials go to:
http://cancetrials.nci.nigh.gov/.  Once you have researched this information if we may be of further help or you just need to be around the people in the trenches you are always welcomed.  Your friend, lillian

 WELCOME TO YOUR MOL CANCER FORUM

       Here you will meet a wonderful caring group of individuals who are
       cancering or who are loved ones  and friends being  advocates for those cancering.
       Individuals in this group are not in the medical professional field.  Therefore,we do not
       endorse a treatment, drug or product.  Our people combined do have many year's of
       accumulated knowledge and expierence, who come from all walks in life and are able to
       lend tremendous assistance to help you walk through this journey.

       There are a few matters of importance to address.
       It is the general assumption of the group that one can use alternative treatments (with your
       doctors permission) in conjunction with traditional therapy.
       We feel that an individual who has had testing and is returning to the doctor should take
       someone with them as an extra set of ears.
       It must be remembered that this is a most stressful time for you.  We also agree that a
       second or even a third opinion is healthy.  One needs to shop for the right doctor for them;
       as each of us are so different not only in personality; but our bodies react differently.
       You should be seeking nothing but the best doctors and hospital, remember this is your life
       and you want to be in control.  The best way to be in control is to acquire all the information
       needed for your particular cancer; so that you and your doctor can descide the best
       treatment for you.
       We find stress is our worse enemy, it is so important to remove yourself from stressful
       situations and non positive thinkers.
       There are so many new drugs and treatments our there for most cancers that lend hope to
       all.
       Be prepared for you doctors visits with questions.  Should the doctor interrupt you while
       you are questioning explain that you have more questions.  Make sure the doctor speaks to
       you in lay terms and that he is positive also.
       Too often the doctor will give a gloomy statistical report, thus taking  hope away from the
       patient and we find so many people who far out live the guess of any doctor.  Last; but
       never least make sure that you eat healthy and that you keep your immune system built up.
       Again, we are here for you, we are a place of compassionate comfort, a place you can rant
       and rave knowing that we too have done that.  A place of shelter; whereas all of us know
       what you are going through.  Your friends of the MOL CANCER FORUM

                                       TRADITIONAL SITES

        National Cancer Institute      http://rex.nci.nih.gov
       Univ of Penn                         http://cancer.med.upenn.edu
       Cancer Notes on the Net      http://www.cancernews.com
       Medicine On Line                 http://www.meds.com
       MD Anderson                       http://www.mdanderson.org
       Mem. Sloan-Kettering          http://www.mskcc.org

       Alternative Medicine

             www.canceranswers.com
             85% CancerAnswers - Alternative Treatments
             84% Cancer Information -Alternative Treatments

        www.chiro.org
             84% CANCER TREATMENTS/ ALTERNATIVE
             84% Alternative Remedies for Cancer and other diseases.

        www.meds.com
             84% Re: Alternative cancer treatments [00299]
             83% 5. Internet Resources on Cancer
 

       MEDICAL DICTIONARIES
 
 
 

         BOOKS                                "50 Esential Things to Do When the Doctor
                                                         Says it is Cancer", Greg Anderson

                                    HOME HEALTH CARE

       National Association for Home Care
       c/o Consumer Guide
       P.O. Box 14241
       Washington, DC 20003
       (202)547-7424
       (202)547-3540 FAX
       Web site: http://www.nahc.org/
       Trade association providing referrals to home or hospice care.

       The Oley Foundation
       214 Hun Memorial, A-23
       Albany Medical Center
       Albany, NY 12208-3478
       (518)262-5079
       (800)776-OLEY
       E-mail: mailto:taylor@ccgateway.amc.edu
       Web site: http://www.wizvax.net/oleyfdn
       Support for home enteral and/or parental nutrition therapy.

       Olsten HealthCare
       175 Broadhollow Road
       Melville, NY 11747
       (516)844-7800
       (800)66-NURSE
       Web site: http://www.olsten.com/
       Provides home health care services including chemotherapy, nutrition and hydration
       therapies, pain management, physical therapy, and general nursing services.

       Visiting Nurse Association of America National Office
       3801 East Florida Avenue, Suite 900
       Denver, CO 80210
       (888)866-8773
       (303)753-0218
       Provides skilled nursing and assisted living services.

       Amherst H. Wilder Foundation
       919 Lafond Avenue
       St. Paul, MN 55104
       (612)642-4000
       (612)642-4068 FAX
       Web site: http://www.wilder.org/
       Provides assisted living and nursing home care services for the elderly in the
       Minneapolis area.

       Childrens' Hospice
       2202 Mt. Vernon Ave., Suite 3C
       Alexandria, VA 22301
       (703)684-0330
       (703)684-0226 FAX
       E-mail: mailto:chiorg@aol.com
       Web site: http://www.chionline.org/
       Provides information and referral services,counseling, support groups, education, and
       research aimed at improving hospice care for children.

       Choice in Dying
       1035 30th Street NW
       Washington, DC 20007
       (202)338-9790
       (202)338-0242 FAX
       Web site:http://www.choices.org/
       Advocacy organization for end-of-life rights;provides legal counseling and information on
       end-of-life decisions.

       National Association for Home Care
       c/o Consumer Guide
       P.O. Box 14241
       Washington, DC 20003
       (202)547-7424
       (202)547-3540 FAX
       Web site: http://www.nahc.org/
       Trade association that provides referrals to local hospice organizations.

       Hospice Education Institute/Hospicelink
       190 Westbrook Road
       Essex, CT 06426
       (860)767-1620
       (800)331-1620
       (860)767-2746 FAX
       E-mail: mailto:hospiceall@aol.com
       Provides information and referral services,education, advice and assistance regarding
       hospice and palliative care.

       National Hospice Organization
       1901 N. Moore Street, Suite 901
       Arlington, VA 22209
       (703)243-5900
       (800)658-8898
       (703)525-5762 FAX
       E-mail: mailto:drsno@cais.com
       Web site: http://www.nho.org/
       Provides information and referrals to local hospitals, patient advocacy and professional
       education.

       National Institute for Jewish Hospice
       8723 Alden Drive, Suite 219
       Los Angeles, CA 90048
       (310)854-3036
       (213)HOSPICE
       (800)446-4448
       Provides free telephone counseling and referrals; trains professionals in the art of helping the
       Jewish terminally ill.
                                               RESOURCES/ LEGAL

       Americans with Disabilities Act
       U.S. Equal Employment Opportunity Commission
       Office of Legal Council
       1801 L Street NW
       Washington, DC 20507
       (202)663-4503
       Provides information and legal assistance regarding discrimination due to illness or disability

       Family Medical leave Act
       U.S. Department of Labor
       Wage & Hour Division
       200 Constitution Avenue NW
       Washington, DC 20210
       (202)219-8412
       Provides information on employment rights during medical leave due to illness

                           Support Services: Finance & Insurance

  American Association of Health Plans
  Membership Department
  129 20th Street NW, Suite 600
  Washington, DC 20036
  (202)778-3200
  Web site: http://www.aahp.org/
  Insurance industry trade association that will provide information on insurance and health care
  issues.

  Blue Cross and Blue Shield Association
  675 North St. Claire Street
  Chicago, IL 60601
  (312)440-6000

  Department of Health and Human Services
  Inspector General Hotline
  Office of the Inspector General
  P.O. Box 23489
  Washington, DC 20026
  (800)368-5779
  U.S. government hotline for complaints regarding Medicare or Medicaid; provides assistance with
  issues of entitlements, benefits, insurance, and community resources.

  Disabled American Veterans
  807 Main Avenue SW
  Washington, DC 20024
  (202)554-3501
  (202)554-3581 FAX
  Web site: http://www.dav.org/
  Provides assistance with health benefits for U.S. veterans.

  Hill-Burton Free Hospital Care
  5600 Fishers Lane, Room 7-47
  Rockville, MD 20857
  (800)683-0742 Hotline
  (301)594-5999 FAX
  Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
  U.S. government program that can arrange for cost-assisted care for disadvantaged individuals at
  certain medical facilities or hospitals.

  National Insurance Consumer Hotline
  1001 Pennsylvania Avenue, NW
  Washington, DC 20004
  (800)942-4242
  Provides assistance in finding insurance coverage, information on insurance issues and a consumer
  complaint service.

                                              SUPPORT SERVICE TRAVEL

 
 
 

                                               Support Services: Hair Loss

  Look Good, Feel Better
  The American Cancer Society
  (800)395-LOOK
  Teaches women who have undergone cancer treatment how to improve appearance through
  cosmetics, wigs, scarfs, etc.

  Y-ME WIG
  212 West Van Buren Street, 4th Floor
  Chicago, IL 60607
  (800)221-2141
  (312)294-8598 FAX
  Web site: http://www.y-me.org/
  Provides donated wigs free of charge.
 
 
 
Hi Annie and welcome.  I have included some excelent sites for you to explore and acquire the knowledge you need to help your dear aunt. For cancer trials go to:
http://cancetrials.nci.nigh.gov/.  Once you have researched this information if we may be of further help or you just need to be around the people in the trenches you are always welcomed.  Your friend, lillian

Annie Huang wrote:

 
My aunt has been diagnosed with inoperable pancreatic cancer
recently.  We are researching various options for treatment.
Are there any clinical trials available for this cancer?
Any information would be useful.  Thank you in advance, Annie.