Dear Carol,
Hope your day is more peaceful than the past week or so has been.
I live in Baltimore; have heard that while JH has a great oncology center,
they are so into research that they sometimes forget their patients are
people.
Certainly your doc is taking an agressive approach. While not a doctor, I
believe in being agressive with this junk. Get rid of it in the quickest
way possible - I am still taking chemo every week - tomorrow will be one
month.
Am beginning to experience a lot of joint pain and the hair is breaking off
- such fun - but I am determined - joints or no joints, hair or no hair.
Trust you will do well with your treatment.
You are in my thoughts and prayers.
Suzanne
At 01:08 PM 8/4/98 -0700, you wrote:
>Dear Nancy,
>
>Thanks so much for you encouraging words. I hope Don is doing well.
>My oncologist wants to do radiation concurently with my chemo.
>I am concerned about this and I am not sure of it yet. It seems that
>your oncologist decided on radiation following chemo or did you research
>and
>decide this on your own? I would really appreciate hearing the whys and
>wherefores if you have the time.
>
>Also, is Don's case limited stage? I am in a gray area between
>limited and extensive stages. Although, my cancer is
>only in the one lung [upper/lower lobes of the right lung and hilum
>(sp?)]
>and in the mediastinum to the right of the trachea which is considered
>limited
>stage, the cancer is not entirely encompassable in a radial port which
>is technically considered extensive stage.
>
>Due to the fact that the bulk of the cancer will fit into the port, the
>radiation oncologist wants to radiate just that part. I don't know if
>the radiation will
>do any good since a cluster of 4 or 5 nodules will be left out, although
>the
>the oncologist seems to think so.
>
>I hope all goes will with Don's radiation. Please keep me posted. I
>will
>be starting chemo, finally and for sure, on Monday, August 10th. I am
>still
>debating radiation. My oncologist said I could start radiation the
>following
>week. So I have a little time to think about it.
>
>By the way, I feel a lot better than I did the day I was obsessing about
>the
>doctor from JH calling. Believe it or not, he still hasn't called. I
>called
>my local oncologist and we will be starting with or without JH on
>Monday,
>as I said. I guess I'm starting to realize, sometimes things happen
>as they should.
>
>Thanks for the input on quitting smoking. I am still battling, but it
>helps to have the support from the MOL group. :) I can't wait until
>I get to the point, like you, where I realize that smoking no longer has
>control over me. But for now, it remains a struggle.
>
>You and all the others here on MOL will be in my prayers, too.
>
>Take care,
>Carol
>
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