[MOL] Re: Her2-neu gene missile [02159] Medicine On Line


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[MOL] Re: Her2-neu gene missile



Linda Epstein wrote:
> 
> Dear John,
> 
> I want to thank you for the help you offer so many.  I am new to the listserv,
> but have already found some encouragement from the messages I have seen you
> send to others.
> 
> You very kindly offered to send this letter on behalf of my sister and others
> in her situation.  The drug company insists that they are doing the best they
> can, and that supplies are limited.  However, the antibody is available through
> clinical trials to women who have recently diagnosed Metastatic Breast Cancer
> with no previous chemotherapy. So, supplies ARE available to those who have a
> better prognosis. The lottery is only for women who have failed 3 forms of
> chemotherapy and have the genetic flaw. The injustice is maddening! If
> necessary, we might be going to California to give a more personal message to
> the company.  The fax# is 1-415-225-5335, email address is "Webmaster@gene.com"
> or you can mail them to:
> 
> Mr. Arthur Levinson, Ph.D., President, CEO
> Genentech, Inc.
> 1 DNA Way
> South San Francisco, CA 94080-4990
> (650) 225-1000
> 
> Please have anyone you know who is interested send this, and thank you all from
> my family.  We are grateful that in contrast to the coldness of the corporate
> machine, we have the compassion of those who have helped us to give us
> strength.
> ___________
> Dear Mr. Arthur Levinson, Ph.D., President, CEO
> 
> The women who were not chosen in the lottery for access to RHUMAB HER2, Gene
> Missile, including Deborah Taylor of West Bridgewater, MA, need your
> understanding and compassion.  You have denied these women the possibility of a
> future.
> 
> Please reconsider your policy, which is virtually a death sentence to some and
> allow these women the opportunity to experiment with this drug immediately.
> You have a moral obligation to do the right thing and give these women one last
> chance for survival.
> 
> Thank you for your consideration and "compassion."
> 
> Sincerely,
> 
> Name:___________________________________
> Address:________________________________
> City and State:_________________________

Dear Linda,

I have sent a letter fax to the company.  My pleasure.  It certainly does 
not make sense that the have to lotto this treatment for clinical care 
yet have sufficient quantities to meet clinical trial needs.  Sounds like 
something 20/20 or another national news investigation programs could 
sink their teeth into.  You may want to follow up on that end.

I am posting this as a cc to mol-cancer as I believe other subscribers 
might wish to help as well.

God Bless,

John
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