Hi, Marty, Diana, everyone:
I am beginning to get a bit frustrated in my plight to find other
Mesothelioma patients. We have so little time to decide on a treatment;
they told me brother that he has 7-9 months if he doesn't opt for surgery
and we want to gather all the information possible before making that
decision. I've combed all the sites and, although there are profiles of
other patients, there is no email address or contact listed so that you can
actually speak with a patient.
Anything any of you can find, I'll be so appreciative if you send it to me.
I'm even starting to look at those options that I considered "crazy" before!
Thanks.
Lisa Whiting
At 05:42 PM 10/25/97 -0500, you wrote:
>Fiona,
>
>Sorry your mother is ill.
>
>SOME adenocarcinomas respond well to chemo; others respond better to
>alternative medicine. I urge you to get as much specific info as you can
>about her tumor as possible. ALSO, if they've not yet operated on her,
>insist that they send the tumor out for testing the minute it is removed
>(that will show to 70% accuracy which chemo the tumor will best respond to.
>Doctors do not, as a rule, use these tests, as they are not 100%
>reliable/valid, so you'll have to INSIST. For more info on this, see
>http://www-med.stanford.edu/CBHP/Medical/Chemotherapy/Chemosensitivity/Short
>_Version.html)
>
>Were I you, my next step'd be looking up the SEER data (mortality stats) on
>your mom's kind of cancer with/without chemo, if it's available.
>
>And then I'd look into alt.med, especially if your mom is in her late 60's,
>early 70's.
>
>Six years ago, before I knew abt alt.med, both my brother and I encouraged
>our mom to do chemo when she was diagnosed w/breast cancer. We did her no
>favor, I assure you. It ruined what was left of her health for the few
>years left to her thereafter. She couldn't get around, her bladder and
>bowels kept giving 'way (NOT from cancer, but from chemo's devastation),
>and she had a hard time shaking even minor colds thereafter. She never
>returned to a doctor after that...until she was terminal. Then we got
>hospice. And then she passed away.
>
>Had I known then about the benefits of megavitamin therapy, peroxide, and
>chelation (alt.med's "tri-oxidative therapy"), I'd never have urged her to
>do chemo. We were just so afraid she'd die unnecessarily, and we believed
>that chemo was the answer. We didn't know how often it failed for breast
>cancer, which is what she had.
>
>Three mos after my mom died, I was diagnosed with breast cancer myself. At
>that point, KNOWING how little standard.med actually HELPS with bc, I
>researched alt.med and am, in fact, going that route myself. IT IS NOT
>WITHOUT ITS RISKS, of course, but they are generally reversible.
>
>Feel free to write to me at cberlin@wave.tcs.tulane.edu should you want
>additional info. I've been too tired myself, lately, to keep up with MOL,
>but I do answer mail that's addressed to me directly.
>
>Hope your mom's disease responds to treatment, whatever she chooses.
>
>Warmly,
>Carole Berlin
>cberlin@wave.tcs.tulane.edu
>
>
>
>> I am a post-doc in the Scripps, CA. I have just discovered my mother
>>has a Grade 3 adenocarcinoma with plural effusion in the right lung. We
>>have to decide whether it is worth her while to have chemotherapy or
>>not. I am returning to visit her in Scotland on Thursday. If anyone has
>>any relevant information I would be very grateful.
>>
>> Yours sincerely,
>>
>> Dr. Fiona Simpson.
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