I am sorry I can't answer your questions, but I was wondering what your symptoms
were that made you go in and have your hip checked?
Joanne
CELIA BROOKS wrote:
> Hi everyone,
> My name is Celia and I just found you yesterday while
> browsing on the web.
> I am 34 years old and have just been diagnosed with
> recurring osteosarcoma.
>
> I had my first occurrence at 15 in my right hip which began a
> long and arduous journey for the right doc/hospital......well,
> even the right diagnosis.....I have been to Mayo, Hopkins,
> and a variety of local hospitals along the way. It was
> exploratory surgery which found it in the first place after a
> myriad of speculative diagnosis' such as JRA, Lupus....I even
> had an ortho doc (Petterson) at Mayo tell me it was
> "Snapping Hip Syndrome" it wasn't until unsuccessful
> treatment for this that exploratory surgery was done and they
> found the tumor inside of my hip joint......
>
> All of this to say that it's back again now for the third time
> (this time in my right femur) and I have no idea where to turn.
> I live just outside of Washington, D.C. and my doc at
> Hopkins (L. Riley) is now retired, and am being treated for
> chronic pain there by Dr. Raja but sometimes I feel like their
> right hand doesn't know what their left hand is doing (being
> passed around from department to department)....I just want
> some answers and a plan of treatment I can "live" with. I
> don't want to spend 3 months waiting for an appointment only
> to find out that this isn't the doctor that I need to see. Time
> is so critical. Thanks for listening to me babble.
>
> DOES ANYONE HAVE ANY REFERRALS FOR A GREAT
> OSTEO ONCOL DOC WHO SPECIALIZES IN HIPS AND
> LEGS?
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