Bill Wu wrote:
>
> Dear Friends,
>
> My nephew in china was recently diagnosed for malignant (intermediate
> stage) schwannoma (nerve sheath tumor) on his shin (left lower leg). So far
> metastasis has not been detected in his blood or other parts of the body.
> The surgent in china performed radical excision on Oct. 17 on the tumor (10
> cm in length) and the surrounding area as well as disinfecting the bone
> that had been affected. However, his doctor and family in china are
> currently seeking advises regarding post-operational treatments that may
> lead to longer survival time. Do you know any patient with similar cancer
> or any soft tissue sarcoma oncologist who may be able to provide some
> information regarding: (1) what is the most widely used and effective
> procedure for malignant schwannnoma in lower leg (shin) ? (2) what are the
> most effective drugs available for chemotherapy of soft tissue sarcoma? or
> what kind of radiation therapy would you suggest? (3) statistically, what's
> the survival rate and survival time for radical excision/chemotherapy vs.
> amputation of the leg. Any response to this message will be greatly and
> deeply appreciated. Please respond directly to my E-mail address
> (bwu@stressgen.com) with subject as replay to Bill Wu. Alternatively, you
> can fax me at 250-744-2877, attention Bill Wu. Thank you very much for your
> time and kindness.
>
> Sincerely yours,
>
> Bill Wu, Ph.D.
> Research Scientist
> Molecular Biology Div.
> StressGen Biotechnologies Corp.
> Victoria, B.C., Canada
> (Tel) 250-744-2811
> (Fax) 250-744-2877
>
>
Dear Bill,
I have a friend who just had a similar disease. Rare I believe. But she
has had surgery and radiation and chemotherapy and she is doing well.
Her treatments came from the City of HOpe In Arcata, California.
May I suggest you call them and maybe they will review the medical
records if you send to them. They are extraordinary in this field. You
might also want to call the National Cancer Institute at 1-800-4cancer
to see if there are comprehensive hospitals that treat this disease.
Also ask them for P.D.Q's (physician data query) that explain and define
the type of disease and the recommended treatments. Also ask them for
clinical trials that are being run now for this area.
My best to you and your nephew and family.
God Bless You
Marty Auslander
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