Myelofibrosis, Essential Thrombocythemia, Polycythemia Vera [00488] Medicine On Line


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Myelofibrosis, Essential Thrombocythemia, Polycythemia Vera



Dear Sara,
I am assuming by mf that you mean myelofibrosis, one of the
myeloproliferative disorders.  You can find much information on web page:
http://members.aol.com/mpdpage

There you will also be able to subscribe to MPD-NET a support/discussion
group one of a family of support groups hosted  by St. John's University.
There are many members in the group who have MF and you will receive a lot of
first hand information on the subject and have many of your questions
answered. I have Essential Thrombocythemia and have benefited greatly by
being in the group.  If you would like to subscribe,send an e-mail message
to:

To: Listserv@sjuvm.stjohns.edu
Subject: Put a dash -
Message: Subscribe MPD-NET your first and last name

If you have any difficulty subscribing you may reach the list owner Joyce
Niblack at XGYZ79A@AOL.COM or XGYZ79A@MSN.COM and she will be more than
willing to assist you.

Be sure to send me an e-mail  (or you can request directly from the web site)
and request  a complimentary copy of the MPD Voice, a quarterly offline
newsletter dedicated to the myeloproliferative disorders,  and published by
the MPD Research Center, Harriet S. Gilbert MD.  Dr. Gilbert is a world
renowned specialist in the these rare disorders and MPD-NET@sjuvm.stjohns.edu
and the MPD Voice newsletter are part of the network of support services
provided by members of the Research Center.

If I can assist you in any way, please do not hesitate to contact me.  Best
Regards, Wendy Capri   IsleOCapri@AOL.COM    or WendyC@ix.netcom.com