Dear Sara,
I am assuming by mf that you mean myelofibrosis, one of the
myeloproliferative disorders. You can find much information on web page:
http://members.aol.com/mpdpage
There you will also be able to subscribe to MPD-NET a support/discussion
group one of a family of support groups hosted by St. John's University.
There are many members in the group who have MF and you will receive a lot of
first hand information on the subject and have many of your questions
answered. I have Essential Thrombocythemia and have benefited greatly by
being in the group. If you would like to subscribe,send an e-mail message
to:
To: Listserv@sjuvm.stjohns.edu
Subject: Put a dash -
Message: Subscribe MPD-NET your first and last name
If you have any difficulty subscribing you may reach the list owner Joyce
Niblack at XGYZ79A@AOL.COM or XGYZ79A@MSN.COM and she will be more than
willing to assist you.
Be sure to send me an e-mail (or you can request directly from the web site)
and request a complimentary copy of the MPD Voice, a quarterly offline
newsletter dedicated to the myeloproliferative disorders, and published by
the MPD Research Center, Harriet S. Gilbert MD. Dr. Gilbert is a world
renowned specialist in the these rare disorders and MPD-NET@sjuvm.stjohns.edu
and the MPD Voice newsletter are part of the network of support services
provided by members of the Research Center.
If I can assist you in any way, please do not hesitate to contact me. Best
Regards, Wendy Capri IsleOCapri@AOL.COM or WendyC@ix.netcom.com
