From: SMTP%"mol-cancer@linux.kbt.com" 10-JUL-1996 01:13:21.68
To: SKLEIN
CC:
Subj: long term side effects from chemotherapy; long term survivor complications
--------
I am/was very relieved to see Nancy's questions and the responses to them.
-Since getting answers from independent research is extremely difficult.
Doctors don't seem to have alot of information on the subject.-
Except, of course, that it can happen. There seems to be a lack of "Journal"
documentation. So this kind of exchange is wonderful.
I had 5fu intravaginally- I have tingling etc.. in legs and feet,
sharp pains in joints (knee and ankle) causing them to give way at times.
Stress definitely is a factor. I've been trying to determine if my period has
anything to do with worsening conditions. I think so. I began
experience the above symptoms during the chemo. I am 'only' almost 1 1/2 years
post chemo, however there seem to be a leveling off off getting any better.
I have other symptoms as well, Mouth, gastric, vaginal, but I stay in hopes
that they'll resolve more- but doubtful
Thanks again
Sue
SKLEIN@NPR.ORG
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Date: Tue, 09 Jul 96 23:40:07 -0700
From: Nancy Van Antwerp <njvan@cris.com>
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Subject: long term side effects from chemotherapy; long term survivor complications
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Am interested in peoples experiences with long term side effects (5+
years post chemo), especially from vincristine, adriamycin, bleomycin,
cytoxan, matulane, prednisone or any combination thereof. Would like to
hear from anyone who has experienced neuro-muscular difficulties,
including numbing in extremities, tingling, occasional sharp pain, muscle
pain, isolated hot flashes, bone or joint pain or panic attacks. If
you've experienced these symptoms, what has been the response or
explanation from your physician? How if at all have your symptoms been
treated? How did you get your physician to take your concerns seriously?
What literature, if any, have you found on the subject? What have you
found on your own that ameliorates or aggravates your symptoms? What
other side effects have you experienced that I have not mentioned? How
long was it after your chemo that you experienced negative side effects?
Thanks.
