Re: Essential Thrombocythemia [00056] Medicine On Line

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Re: Essential Thrombocythemia

I believe it is fair to identify the prognosis due to Essential 
Thrombocythemia as having "a favorable long term diagnosis" (from 
Southwestern Internal Medicine Conference: The Clinical Spectrum of 
Thrombocytosis and Thrombocythemia bu Eugen P. Frenkel, MD)  

I, too, was diagnosed with Essential Thrombocythemia approximately 6 
months ago.  Due to my recurring symtoms, I have chosen a different 
"experimental" drug -- alpha interferon.  My present dosage is 2.5 
million units every day.  My initial counts were arond 2300, they are 
presently around 800.  I am 41 years old and otherwise healthy.  
I would be very interested in further communication with anyone having 
this disease.  The bigest fear I have is the conversion of ET into AML 
(acute myelogenous leukemia). 

If your wife had to develop a cancer, ET is certainly better than 
most.  Please send a direct email to me at

______________________________ Reply Separator _________________________________
Subject: Essential Thrombocythemia
Author: at INTERNET
Date:    9/18/95 5:08 PM

My wife has ET.  She is 37 and taking the experimental drug Anagrelide to 
reduce her platelet counts.  I would like to know more about this clonal 
disorder and get a better idea of the prognosis for someone so young.  She 
presented with symptoms and they do return when the platelet levels get very 
high.  Thank you.