I believe it is fair to identify the prognosis due to Essential
Thrombocythemia as having "a favorable long term diagnosis" (from
Southwestern Internal Medicine Conference: The Clinical Spectrum of
Thrombocytosis and Thrombocythemia bu Eugen P. Frenkel, MD)
I, too, was diagnosed with Essential Thrombocythemia approximately 6
months ago. Due to my recurring symtoms, I have chosen a different
"experimental" drug -- alpha interferon. My present dosage is 2.5
million units every day. My initial counts were arond 2300, they are
presently around 800. I am 41 years old and otherwise healthy.
I would be very interested in further communication with anyone having
this disease. The bigest fear I have is the conversion of ET into AML
(acute myelogenous leukemia).
If your wife had to develop a cancer, ET is certainly better than
most. Please send a direct email to me at
cwadams@ccgate.dp.beckman.com.
______________________________ Reply Separator _________________________________
Subject: Essential Thrombocythemia
Author: mol-cancer@linux.kbt.com at INTERNET
Date: 9/18/95 5:08 PM
My wife has ET. She is 37 and taking the experimental drug Anagrelide to
reduce her platelet counts. I would like to know more about this clonal
disorder and get a better idea of the prognosis for someone so young. She
presented with symptoms and they do return when the platelet levels get very
high. Thank you.
